“This can’t be happening right now.” It was freezing outside, and once again I was in a daze, talking to my doctor while planning a trip. It was the second time, albeit for different reasons, that a trip I’d desperately been looking forward to was threatened by medical issues. The…
When I try to understand the complexities of cystic fibrosis (CF), it often feels like trying to get through Newark Liberty International Airport: What am I doing, how did I get here, and which way to the bathroom? Like the thick mucus in a CF patient’s lungs, people in…
Nonsense can be defined as “an instance of absurd action.” That’s kind of how doctors described my cystic fibrosis (CF) mutations. It was as if my mom hit the New York Lottery and my dad hit the New Jersey Lottery on the same day at the same time. My…
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