Valiant Voice – a Column by Lara Govendo

All of us who are affected by cystic fibrosis have our own unique experiences. No two stories are the same, let alone our genetic mutations. Taking it to the next level and looking deeper into what makes us who we are is risky, but necessary. Sharing the most vulnerable parts…

It’s been three and a half years since I “chose” life through a double-lung transplant. Life-and-death decisions rarely are black and white. The path to making my decision wasn’t linear; it was a journey to wrestle through, devoid of clear-cut answers. I hope this column will help those on…

Two of the most powerful words in our vocabulary are “me, too.” Many of us tend to isolate ourselves when our circumstances are challenging. We turn inward rather than outward because we feel shame about what we’re going through. When we find that person or group of people that gets…

Hearing the words “blood transfusion” still sends chills down my spine. The emotional response my entire body felt when I heard those words for the first time from a doctor is still traumatic. “I wasn’t supposed to get one of these,” I thought. I had just had a double-lung transplant…

Most people hate the attention birthdays bring. I get it. It’s only in recent years that the meaning of birthdays has shifted for me. Prior to my double-lung transplant three years ago, every year of life felt like a feat. Now, every birthday is icing on the cake — literally.

The holidays always seem to be a complex topic. Adding chronic illness to the mix makes them even more tense. And now the world is living through a pandemic, which adds a layer of ambiguity. Navigating uncertainty brings anxiety, but we have a choice in how we respond. Holiday…

If you told me 10 years ago that I would be reliant on my parents again, I would have laughed in your face. I was always proud about being independent, and I didn’t need anyone to help me — until I did. When I had my double-lung transplant three…

As a person with cystic fibrosis, I’ve formed close-knit relationships with care providers in multiple disciplines. Before my double-lung transplant three years ago, I was hospitalized frequently. I would be hospitalized for a couple weeks, out for a few, and then back in again. So the cycle went. My…

I remember what it felt like to get fired for being sick: that pit in the middle of my belly that caused my mouth to go dry, my voice to shake, and my face to flush with shame. Sitting around a table with multiple bosses, I couldn’t believe what I…

What is that heaviness on my chest that feels like a ton of bricks, for which the only relief is bawling my eyes out? Ah yes, I remember you. The raw, real emotions that creep in the shadows of night, depression is a monstrous hitter. It knows how to…