Birthdays aren’t just another day for me — they’re a reminder that I’m still alive. Last month, I turned 36. I’ve lived my entire life thinking I would die young. Growing older with cystic fibrosis (CF), living with minimal inhibition, and dreaming about the future all feel like…
Valiant Voice – a Column by Lara Govendo
I’m a bit of a nerd when it comes to books. I get so excited when new books are delivered to my home. Yes, I still read physical books. Am I alone in that? I’m not afraid to admit I’m old-fashioned about the healing power of physical books. They’ve changed…
More often than not, I act healthy when I’m actually sick. Many people with chronic illness will pretend like everything is fine, even when it’s not, due to societal pressure to present an appearance of perfect health. I struggle to be honest about how I’m feeling because the answer…
I never thought I’d say this, but it’s my reality: I’m a diabetic. It’s hard to admit this is a part of my life now. Like most aspects of my health, my diabetes is atypical. It didn’t stem from a bad diet or excessive sugar intake, as most people tend…
My lung health has been on my mind my whole life. I’m constantly assessing potential environmental risks, my breathing, and what I can do to improve my lungs. Living with cystic fibrosis (CF) taught me to think about every breath. Five years of life after my double-lung transplant…
Knowing my life expectancy due to cystic fibrosis (CF) used to play tricks on my mind. Who am I kidding? It still does sometimes. For the first several years of my life, CF was known as a childhood disease because many people didn’t live into adulthood. With…
The pain scale has never made sense to me. It’s probably because I can’t remember a time when I haven’t been in pain. For all the different types I’ve experienced, none are evident in my appearance or demeanor. This adds to the complexities of my life with chronic pain. Throughout…
Grief doesn’t respect timing or social etiquette. It typically hits me at the worst times, when it’s inconvenient to have sweat trickling from my eyes. As I reflect on the complex changes that happened during my serious sick days before my double-lung transplant, and now five years later,…
As I prepare to celebrate five years with my new lungs, I’m experiencing a wide range of emotions. My double-lung transplant has allowed me to do so many things I never dreamed I’d be able to do, which brings excitement, gratitude, and hope for the future. My five-year…
When I started evaluation for my double-lung transplant in spring 2015, I didn’t have any friends in the cystic fibrosis community. As I took the brave step to join Facebook groups to make connections and learn more about transplant, my eyes were opened to a whole new world. There…
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