Las Cosas de la Vida - a Column by Luisa Palazola

Luisa Palazola is a 25-year-old with CF living in Memphis, Tennessee. She injects her perspective as a Hispanic woman and her love for life and stories in all her interactions. In her downtime, she’s learning Portuguese and is an avid coffee lover.

Being Brave and Making a Meaningful Connection

The cystic fibrosis (CF) community was in an uproar during the lead-up to the release of the film “Five Feet Apart.” Viewers had many reactions, such as the following: “It glamorizes our disease.” “There should’ve been more involvement from the CF community.” “But it creates awareness.” In this column,…

3 Ways Fear and Anxiety Shaped How I Cope

Growing up with a chronic illness like cystic fibrosis has always bordered on terrifying, which is something I hadn’t quite come to terms with until recently. How does a kid respond to concepts of mortality and suffering, anyway? Parents of kids with CF often…

Sleep Tight, CF Community

Life has a way of changing plans and allowing others to help you embrace a new path. Before I sat down to write this column, I went to my favorite coffee shop to get an iced vanilla latte. I enjoy the small moments with my…

A Conversation With Rare Disease Advocates

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