Modern CF Mama - a Column by Janeil Whitworth

Janeil Whitworth is a Cleveland native, coffee-drinking, flower-picking, cystic fibrosis fighter. She is living out her wildest dream as a wife and mother to the sweetest baby boy, Fenn, all while managing her health and sanity. She enjoys sharing the incredibly messy and joyful highs and lows of living with a chronic illness on her personal blog, Flowerlungs.

Your CF Partner Can Help Make You Healthier

It’s true that having a partner in life can be a gift. Sharing the celebrations and sorrows makes life sweeter, especially when you’re living with CF. However, many people with CF struggle with the guilt of asking someone to tackle CF life alongside them. A relationship that includes CF almost…

Giving Thanks for the Positive Things CF Has Brought

It’s that time of year when we sit around our tables with carved turkeys, mashed potatoes, and a healthy dose of gratitude in honor of Thanksgiving. Sometimes I struggle to feel grateful. While gratitude may not come easily, the behavior can be learned and reinforced by making it part of…

Rethinking Our Reactions to ‘Five Feet Apart’

The trailer for “Five Feet Apart,” the spring 2019 film about two people with cystic fibrosis (CF) falling in love despite cross-infection guidelines, dropped on social media this month. Like every other person with CF, I clicked on the trailer eager to see what my disease looks like…

Tips for Keeping a Germ-free Household

With the dreaded cold and flu season upon us, my household is gearing up to protect ourselves and avoid sickness as much as possible. Everyone with cystic fibrosis is aware of how a simple cold or flu can evolve into a much more serious problem with lasting consequences. We all…

The Claire Wineland Message I Hope We Never Forget

The passionate outpouring following Claire Wineland’s devastating passing last week has exemplified the influence she had on her friends and family, the cystic fibrosis community, and the millions of strangers she inspired. She was incredibly loved and admired — that was so very apparent. I’m sure you can agree…

A Plan for a Healthier Season in Parenting

This weekend, my son, wearing a tiny crown and old man suspenders, blew out the candle on his birthday cake. It was beyond adorable and tugged at my mama-heart in the saddest way. The blown-out candles marked the end of my first year as a parent. As I’ve written before,…

Identifying and Addressing 3 Barriers to Treatment Adherence

Cystic fibrosis requires a complex and time-consuming treatment plan beyond what many other chronic illnesses require. It’s important to identify the barriers to treatment adherence and find practical ways to address the issues. Forgetfulness We have all been there, the perplexing pause followed by the blank stare directed at the…

What’s the Deal with Breastfeeding and CF?

Happy World Breastfeeding Week! That’s right, in this column we are talking about breasts and the wonderful thing they can do: feed tiny humans. I want to dive into the reasons to breastfeed and how cystic fibrosis plays a role in the choice of whether or not to breastfeed.


Featured Column

Words Between Worlds: Improving Cross-class Communication in Medical Spaces

A banner for Kate Delany's "Breathe and Believe" column that depicts a pair of lungs with flowers blossoming from them.
Columnist Kate Delany investigates how communication between patients, family members, and doctors is often shaped by class origins.

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