A few days ago marked what would have been my sister Alyssa’s 37th birthday. To pay homage to her this year, I’m reflecting on what it’s like to have cystic fibrosis (CF) myself as well as a sibling with CF. When people learn that individuals with CF are advised…
Mutations & Conversations - a Column by Tré LaRosa
Hope is something I have often reflected on throughout my life. In fact, my first tattoo was of a Latin phrase commonly referenced in the cystic fibrosis (CF) world: “Dum spiro spero,” which means “While I breathe, I hope.” But my perception of that phrase has changed over…
The benefits of being in nature are well-documented. There are the physical benefits, such as improving blood pressure and immune activity. And then there are the mental benefits, with people spending time in nature seeing reduced rates of depression and anxiety and increased vigor. These findings don’t…
My friend Steve Silberman died a year ago on Aug. 29, 2024. I was familiar with Steve before he knew me. Steve had written a highly popular and applauded person-centric history of autism titled “NeuroTribes: The Legacy of Autism and the Future of Neurodiversity.” His writing, much like my…
I have been thinking a lot about aging lately. I think about it when I notice that it takes my dog, Duncan, a second longer to stand up after a nap; I think about it when I notice a gray hair in my beard, a privilege; I think about…
Growing up, one of the worst parts of having cystic fibrosis (CF) was the gross orange cocktail I had to drink as part of my annual oral glucose tolerance test. This nightmarish, faux sports drink is full of glucose and is used to screen for diabetes. For years,…
Like many others, I never want to feel like cystic fibrosis (CF) is holding me back in any way. Yet the condition has shaped many of my experiences and taught me so much, including resiliency. At different times — mostly during periods of stability and complacency — I’ve forgotten…
When I was asked to write this column over two years ago, I was thrilled, but I wasn’t quite sure what I wanted to write about. I knew I would have some leniency to tackle different subjects, and I didn’t want to be boxed in. But I also wanted to…
When I took Advanced Placement psychology in high school, a few subjects stuck out to me as being intuitive. I was weirded out by this because the majority of school lessons were not intuitive. Math, chemistry, and biology are logical and scientific, but I don’t naturally understand cells, or how…
I can’t separate my physical malady from my mental diseases. Cystic fibrosis, depression, and anxiety are all linked, and they’re all separate. I think of my blend of comorbidities as a morbid sort of smoothie. I can tell what is going on whenever I don’t feel well, but a…
Your CF Community

Visit the Cystic Fibrosis News Today forums to connect with others in the CF community.
Recent Posts
- My new lungs enable me to enjoy life, even in cold temperatures January 30, 2026
- Kidney failure up to 29 times more common in CF patients: Study January 29, 2026
- What do you do when you’re getting the prescription refill runaround? January 29, 2026
- CF treatment Trikafta boosts lung function for patients over 40 January 27, 2026
- Tiny vesicles boost delivery of fat-soluble vitamins to CF patients: Trial January 26, 2026