Mutations & Conversations – a Column by Tré LaRosa

August 26, 2019August 22, 2019

The Resiliency of the Human Spirit

Columns, Mutations & Conversations - a Column by Tré LaRosa

Few phenomena fascinate me more than human happiness. So often we get caught up in the idea that we would be happier if so-and-so happened. I’m sure I won’t ... Read more

August 19, 2019September 19, 2019

Why the CF Community Should Be Concerned About Climate Change

Columns, Mutations & Conversations - a Column by Tré LaRosa

Climate change is an emergency facing humanity. As we continue to burn fossil fuels and release greenhouse gases, solar heat levels build up in the atmosphere, which acts as ... Read more

August 12, 2019September 18, 2019

Our Relationships with Our Doctors Are Stronger When We Self-advocate

Columns, Mutations & Conversations - a Column by Tré LaRosa

Doctors receive training in particular specialties and, in some cases, subspecialties. But “specialties” and “subspecialties” can be described as a “broad array of diseases” and “broad array of fewer ... Read more

August 5, 2019September 11, 2019

Is There an Upper Limit to the Improvements That CFTR Modulators Can Provide?

Columns, Mutations & Conversations - a Column by Tré LaRosa

The cystic fibrosis community has access to three cystic fibrosis transmembrane conductance regulator (CFTR) modulators right now: Kalydeco (ivacaftor), Orkambi (lumacaftor/ivacaftor), and Symdeko (tezacaftor/ivacaftor). These CFTR modulators are each ... Read more

July 29, 2019September 4, 2019

The Long-term Effect of Disability Language

Columns, Mutations & Conversations - a Column by Tré LaRosa

The life of a person with CF is constantly affected by language. A common debate in the community is how best to label us. Is it better to call ... Read more

July 22, 2019September 11, 2019

‘Everything’ Will Never Be Perfect, and That’s OK

Columns, Mutations & Conversations - a Column by Tré LaRosa

I’ve always been able to eat whatever I wanted. That’s just a part of growing up with CF. Kids are picky eaters to begin with, but when you combine ... Read more

July 15, 2019August 26, 2019

Transforming Adversity into Progress

Columns, Mutations & Conversations - a Column by Tré LaRosa

In my senior year of high school, I went to the exercise section of Dick’s Sporting Goods and searched for boxing gloves. I had decided on a whim that ... Read more

July 8, 2019August 7, 2019

Is it Ethical to Have Another Child Once You’ve Had One with CF?

Columns, Mutations & Conversations - a Column by Tré LaRosa

Since I work in a cystic fibrosis (CF) lab and prioritize being open about my experiences with the disease, I’ve had some pretty heavy philosophical conversations with scientific peers. ... Read more

July 1, 2019August 7, 2019

Finding My CF Community Has Restored My Sense of Belonging

Columns, Mutations & Conversations - a Column by Tré LaRosa

Growing up, I was insulated from the wider cystic fibrosis (CF) community. Since I had a sibling with CF, I didn’t feel the need to meet other kids with ... Read more

June 24, 2019June 21, 2019

My Recent Health Revelation Got Me Thinking About Infertility and CF

Columns, Mutations & Conversations - a Column by Tré LaRosa

Most clinical manifestations of cystic fibrosis (CF) are in the lungs, pancreas, gastrointestinal tract, and sometimes the sinuses, kidneys, and liver. Unsurprisingly, these concerns attract most of the attention. ... Read more

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