Mutations & Conversations – a Column by Tré LaRosa

February 4, 2019February 8, 2019

My Thoughts on Exercise and CF

Columns, Mutations & Conversations - a Column by Tré LaRosa

It’s hard to understate the benefits of exercise for healthy people, let alone people with CF. According to the Mayo Clinic, some of these benefits include: It controls weight. It ... Read more

January 28, 2019January 31, 2019

The Burden of Care in the Life of a CF Patient

Columns, Mutations & Conversations - a Column by Tré LaRosa

A couple of months ago, I did back-of-the-envelope calculations on basic CF stats. Here’s what I asked: In a year, how much time do I spend doing treatments? How ... Read more

January 21, 2019January 29, 2019

The Diverse Spectrum of Health Across the CF Community

Columns, Mutations & Conversations - a Column by Tré LaRosa

If you’ve ever met more than one person with cystic fibrosis, it’s likely they had very different experiences than you. First, their approach likely will be different; chronic disease ... Read more

January 14, 2019January 10, 2019

Let’s Use the Cystic Fibrosis News Today Forums for Empowerment

Columns, Mutations & Conversations - a Column by Tré LaRosa

I ecstatically joined Cystic Fibrosis News Today in September because it was my first major opportunity to generate CF discussion. In this column, I’ve written about what a cure ... Read more

January 7, 2019January 14, 2019

Empowering Children by Educating Them About Their CF

Columns, Mutations & Conversations - a Column by Tré LaRosa

One of my earliest memories from elementary school was leaving class a little early before lunch to go to the nurse’s office to take my enzymes, always accompanied by ... Read more

December 17, 2018December 14, 2018

How Should We Approach Milestones While Grieving?

Columns, Mutations & Conversations - a Column by Tré LaRosa

When Serena Lawrence, the late BioNews senior columns editor, responded to my email about potentially writing for Cystic Fibrosis News Today and promptly offered me a columnist position, I was ... Read more

December 10, 2018December 6, 2018

People with Rare Diseases Are Humans, Not Commodities

Columns, Mutations & Conversations - a Column by Tré LaRosa

If you keep up with CF research, you may have seen the news about Phase 3 of the triple combination Vertex therapies. In these results, patients had a robust ... Read more

December 3, 2018November 29, 2018

For the First Time, I’m Feeling Thankless This Holiday Season

Columns, Mutations & Conversations - a Column by Tré LaRosa

The period between Halloween and New Year’s — what I usually call “the Holidays” — is the time of year I’ve always most enjoyed. Christmas music, chilly weather, early ... Read more

November 26, 2018November 20, 2018

Thanking the Care Teams of Chronic Disease Patients

Columns, Mutations & Conversations - a Column by Tré LaRosa

As I’ve grown older, I’ve become a self-advocate, taking initiative when possible. I’ve developed a close relationship with my care team, which I believe is crucial for adults with ... Read more

November 19, 2018November 16, 2018

The Bittersweet Downside of CFTR Modulators

Columns, Mutations & Conversations - a Column by Tré LaRosa

I’ve been on Orkambi (lumacaftor/ivacaftor), a cystic fibrosis transmembrane conductance regulator (CFTR) modulator, for just over three years now. My lung function has remained stable during that time. CFTR ... Read more

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