Mutations & Conversations – a Column by Tré LaRosa

March 25, 2019May 15, 2019

How We Capitalize on ‘Five Feet Apart’

Columns, Mutations & Conversations - a Column by Tré LaRosa

The CF community’s strength is in its powerful, far-spread voice. For people with a chronic disease, and doubly so when that chronic disease is rare like CF, it is ... Read more

March 18, 2019April 4, 2019

Let’s Talk About Death and Grief

Columns, Mutations & Conversations - a Column by Tré LaRosa

I consider myself a conversation-starter. I like discussing serious topics and sharing my genuine feelings and thoughts with others. I enjoy talking about sports, engaging in light banter, and ... Read more

March 11, 2019March 22, 2019

I See Poetry in the Scientific Process

Columns, Mutations & Conversations - a Column by Tré LaRosa

I walk two paths: One is that of logic in my career as a scientist. In this field, it’s critical to remove emotion from the picture as much as ... Read more

March 4, 2019March 20, 2019

The Power of Escapism

Columns, Mutations & Conversations - a Column by Tré LaRosa

One of the first fiction books I read in adulthood was a book called “The Amazing Adventures of Kavalier & Clay,” by Michael Chabon. The story of how I ... Read more

February 25, 2019March 12, 2019

CF Science Is Unexpectedly Beautiful

Columns, Mutations & Conversations - a Column by Tré LaRosa

During my sophomore year of college, the background on my computer screen was a cystic fibrosis transmembrane conductance regulator (CFTR) protein, specifically a visualization of its quaternary structure. It ... Read more

February 18, 2019February 27, 2019

CF Forces Me to Have a Different Long-term Outlook

Columns, Mutations & Conversations - a Column by Tré LaRosa

In high school, I aspired to be a pulmonologist for obvious reasons: I wanted to aid the CF community by directly helping patients. It seemed logical. I dreamed of ... Read more

February 11, 2019February 18, 2019

My Family Had 2 Children with CF

Columns, Mutations & Conversations - a Column by Tré LaRosa

It was unlikely that my parents would bear two children with CF. When both parents carry a CF mutation but don’t have the disease itself, there is a 1 ... Read more

February 4, 2019February 8, 2019

My Thoughts on Exercise and CF

Columns, Mutations & Conversations - a Column by Tré LaRosa

It’s hard to understate the benefits of exercise for healthy people, let alone people with CF. According to the Mayo Clinic, some of these benefits include: It controls weight. It ... Read more

January 28, 2019January 31, 2019

The Burden of Care in the Life of a CF Patient

Columns, Mutations & Conversations - a Column by Tré LaRosa

A couple of months ago, I did back-of-the-envelope calculations on basic CF stats. Here’s what I asked: In a year, how much time do I spend doing treatments? How ... Read more

January 21, 2019January 29, 2019

The Diverse Spectrum of Health Across the CF Community

Columns, Mutations & Conversations - a Column by Tré LaRosa

If you’ve ever met more than one person with cystic fibrosis, it’s likely they had very different experiences than you. First, their approach likely will be different; chronic disease ... Read more

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