Mutations & Conversations – a Column by Tré LaRosa

June 10, 2019June 6, 2019

Science Literacy Is a Necessity in the CF Community

Columns, Mutations & Conversations - a Column by Tré LaRosa

“Bill! Bill! Bill! Bill! Bill!” Many millennials immediately recognize the iconic jingle that was the introduction to the educational (and entertaining!) children’s science show “Bill Nye: The Science Guy.” ... Read more

June 3, 2019May 30, 2019

I’m Learning to Prioritize My Mental Health While Working Full-time

Columns, Mutations & Conversations - a Column by Tré LaRosa

My depression and anxiety went undiagnosed and untreated for years. I knew something wasn’t right, but I didn’t think it was “bad enough” for me to be officially diagnosed ... Read more

May 20, 2019May 17, 2019

Find Out How You Fit into the CF Community

Columns, Mutations & Conversations - a Column by Tré LaRosa

Three years ago, I was hardly involved in the broad cystic fibrosis (CF) community. My only involvement with CF – aside from the fact that my sister and I ... Read more

May 6, 2019May 3, 2019

How to Love Your Body, Even If It’s Genetically Abnormal

Columns, Mutations & Conversations - a Column by Tré LaRosa

When we say “me” or “I,” what exactly are we referring to? Are we referring to our bodies, our minds, or the combination of the two? It’s both a ... Read more

April 29, 2019April 25, 2019

As a CFer, Birthdays Remind Me that Life Is Fragile

Columns, Mutations & Conversations - a Column by Tré LaRosa

I can remember the day I discovered the truth that I had already suspected in my heart: cystic fibrosis (CF) is a life-shortening disease. I’m just old enough that ... Read more

April 22, 2019April 18, 2019

We Must Pay Closer Attention to the Global CF Population

Columns, Mutations & Conversations - a Column by Tré LaRosa

Based on the stringent qualifications the Cystic Fibrosis Foundation uses to determine who has cystic fibrosis, approximately 70,000 people currently have CF worldwide. That includes 30,000-35,000 in the United ... Read more

April 15, 2019June 27, 2019

My Personal Paradox Sets the Bar Higher and Higher

Columns, Mutations & Conversations - a Column by Tré LaRosa

I have a productivity complex: I feel like if I’m not being productive, I’m wasting my time. And yet, whenever I accomplish something, I don’t bask in the enjoyment ... Read more

April 8, 2019April 5, 2019

How Do We ‘Speak CF’ in a Way that Connects Us?

Columns, Mutations & Conversations - a Column by Tré LaRosa

We all play different roles in our lives: We are friends, children, siblings, parents, cousins, employees, and more. In each of these roles, we assume the jargon of that ... Read more

April 1, 2019June 3, 2019

I Work Next to CF Experts, and I Know They Really Care

Columns, Mutations & Conversations - a Column by Tré LaRosa

For nearly three years, I’ve worked alongside brilliant CF doctors, scientists, and PhDs at a great research hospital. Before that, during college, I worked closely with CF scientists and ... Read more

March 25, 2019May 15, 2019

How We Capitalize on ‘Five Feet Apart’

Columns, Mutations & Conversations - a Column by Tré LaRosa

The CF community’s strength is in its powerful, far-spread voice. For people with a chronic disease, and doubly so when that chronic disease is rare like CF, it is ... Read more

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