News

The Cystic Fibrosis Foundation, a nonprofit donor-supported organization and world leader in the search for a cystic fibrosis cure, recently issued guidelines on the diagnosis and treatment of the disease. These guidelines were conceived by a committee of experts based on the available literature and clinical evidence reported.

In his first weekly column for Cystic Fibrosis News Today, PhD student and CF patient Stephen Shannon talks candidly about what the ongoing search for a cure for Cystic Fibrosis means to him, and why there is great reason for Hope. I was two years old when I was diagnosed…

President Barack Obama, during his recent State of the Union Address, highlighted cystic fibrosis (CF) as the nation’s model for the White House’s upcoming strengthened strategy for “precision medicine,” or groundbreaking treatments that specifically target “chinks” in a disease’s “armor” — commonly found all the way down to a…

The Food and Drug Administration has approved the use of the eRapid Nebulizer (eRapid) from Pari Respiratory Equipment Inc. to administer Genentech’s product Pulmozyme for use by patients with Cystic Fibrosis. Lisa Cambridge, the director of Medical Science and Pharmaceutical Alliances at Pari, described eRapid as, “a true…

Galapagos NV, a Belgium-based, clinical stage biotech company focused on developing novel mode of action medicines, recently announced it has received a €2.5 million grant from the Flemish Agency for Innovation through Science and Technology (IWT), which is meant to fund the company’s further research and development of new antibiotics. Working…

The Welsh Government is set to launch a year-long campaign, called “Time to Talk” that aims to ensure their employees are well-informed of the soon-to-be implemented shift to a soft opt-out system of organ donation, and what choices are available to them. Those who do not register will be considered…

The 26th edition of the Carleton Cup, an annual race dedicated to fundraising for the charitable organization Cystic Fibrosis Canada, is taking place this Saturday, January 24th at the largest skating rink in the world, the Rideau Canal, in Ottawa, Canada. Already dubbed as “The Ultimate Canadian Triathlon,” the event aims to join sports with…

A team of scientists of The University of Bath’s Department of Biology & Biochemistry in Bath, U.K. report that they’ve developed a new gene editing technique that they say will streamline biomedical research and in the future will potentially be harnessed to prevent genetic diseases like Cystic Fibrosis prior…

U.S. lawmakers recently introduced new legislation that could greatly benefit thousands of Americans suffering from cystic fibrosis (CF) and other rare diseases with largely unmet clinical needs by helping them gain access to and participate in clinical trials without having to worry about their health…

British parliament is currently debating the plans of England’s National Health Service (NHS) to transfer more healthcare management responsibilities from national specialized services to local commissioners. However, the debate is generating a major discussion in UK healthcare circles about the risks that could come from trusting the specialized care of chronic and…