News

Cystic Fibrosis (CF), one of the most common genetic diseases among Caucasian children, is classified as an orphan disease, estimated to affect roughly 70,000 individuals worldwide, 30,000 of which live in the United States. While there are several subsidies that cater to research and development…

European leader in Data Driven Medicine, Sophia Genetics, has just launched a first-of-its-kind cystic fibrosis transmembrane conductance regulator (CFTR) in vitro diagnostic (IVD) solution, which will allow doctors to conduct complete CF studies in one next-generation sequencing trial. By providing a complete study of CFTR variants in a single NGS experiment, the company’s…

The non-profit organization Cystic Fibrosis Research, Inc. (CFRI) is organizing a wine tasting event to help support research to find a cure for cystic fibrosis (CF), taking place on Sunday, October 19, between 3 and 7 pm at the Purple Orchid Wine Country Resort & Spa.

The British Gene Therapy Consortium announced recently that it has decided not to attend the upcoming North American Cystic Fibrosis Conference (NACFC), where they were planning on presenting the latest data about their Multidose Gene Therapy (Wave 1) Trial, which focuses on developing a genetic treatment for cystic fibrosis (CF).

A new study entitled “Self-reported exercise and longitudinal outcomes in cystic fibrosis: a retrospective cohort study” published in October issue of BMC Pulmonary Medicine suggests that self-reported exercise improves nutritional and pulmonary outcomes in adults with cystic fibrosis. Cystic Fibrosis is a life-threatening disease, characterized…

App Developer Brian King’s “My Fight Against Cystic Fibrosis” is a Cystic Fibrosis app that is 100 percent designed, developed, and programmed by a CFer. King says the app’s mission is to provide the CF community with a useful tool and resource to help fight Cystic Fibrosis, in the hope…

Enterovirus D68, a non-polio enterovirus that causes mild to severe respiratory illness and can be spread through coughs, sneezes, or touch, has become a contagious problem in the United States. As a result, physicians are paying special attention to patients who already suffer from respiratory diseases or severe disease, such as cystic…

Synedgen, Inc. will present recent study results on the successful application of the company’s novel polymer PAAG for treating Cystic Fibrosis. The data is compiled in two posters entitled “PAAG decreases viscosity and Improves Transportability of Cystic Fibrosis Mucus In Situ” and “Novel Biopolymer Mucolytic PAAG Prevents and Treats Biofilms…

The Great Strides event, a fundraiser associated with the Cystic Fibrosis Foundation, has become the largest national fundraiser advocating for cystic fibrosis (CF), held through monthly initiatives and with the support of families, donors, and friends. This month, those honored by the event are Jen and Justin Grady,…

More and more people are turning to daring, extraordinary feats to call much-needed public attention to orphan diseases such as cystic fibrosis (CF), a debilitating and life-threatening hereditary condition that affects about 70,000 individuals throughout the world. A pair of brothers have recently committed themselves…