News

One of the pressing concerns physicians have with patients diagnosed with cystic fibrosis (CF) is their increased susceptibility to respiratory infections along with greatly decreased lung clearance. A condition that manifests quite similarly to CF is primary ciliary dyskinesia (PCD), a hereditary condition that impairs lung…

Any concern that may exist over cystic fibrosis patients receiving nasal live-attenuated influenza vaccine (LAIV) due to infection risk may be unfounded, according to a new study conducted by Constantina Boikos, MScPH, from McGill University in Montreal. Dr. Boikos and colleagues evaluated 168 cystic fibrosis patients, ages 2 to…

Josh Brown Tommy Bahama, an island lifestyle brand under Oxford Industries, Inc. that markets casual, sporting, and swimming apparel and footwear, has teamed up with Josh Brown of the New York Giants of the National Football League (NFL) for a cystic fibrosis (CF) fundraising campaign. The…

Melissa Benoit receiving treatment, circa 1983 – Image Credit: The Hospital For Sick Children In the 1980’s, life expectancy for persons with CF was just 12 years in the US, and around 20 in Canada. Melissa Benoit spent the first month of her life in the neonatal…

Drug development companies such as NovaBiotics that are devoted to designing and developing treatments for patients with difficult-to-treat, medically unmet diseases are often faced with the hurdle of recruiting enough patients to conduct the clinical trials necessary to approve new treatments. Recently, the hindrance has…

Development-stage drug development company, Parion Sciences, just announced a generous donation from the Cystic Fibrosis Foundation Therapeutics (CFFT) organization worth $3 million. This funding will be allotted to further research on the company’s latest experimental product for cystic fibrosis (CF) — a genetic…

Jess Harrison is a 17-year-old cystic fibrosis (CF) patient who was diagnosed when she was only a baby at 18 months, like so many other patients. The difference is that she — as well as an increasing number of children and teens with the disease — decided to do…

Claire Wineland The inspiring story of a child’s tenacious battle with cystic fibrosis (CF) was the force behind the founding of a non-profit organization with a mission to give much-needed emotional and financial support to children diagnosed with CF and their loved ones. Claire Wineland, now 17 years…

Cystic fibrosis is among the numerous chronic conditions categorized as rare diseases. As many cystic fibrosis patients know, a unique set of burdens are placed upon themselves and their caregivers, and Atlantis Healthcare is working to bring light to patients’ hardships. Recently, Atlantis Healthcare released a white paper with…

Creative Electric (CE), a performance company in Scotland, is launching a fundraising effort to support a new project, a theatrical performance entitled, “HEY, I’M ALIVE!” that gives voice to a character who suffers from Cystic Fibrosis, according to a recent post on the North Edinburgh News (NEN) website.