Growing up with a terminal disease, it was not a secret that one day I would become disabled. What I didn’t expect was how messy the process would be. There’s no handbook or guide about how to become disabled. It’s not as though one day you wake up…
Path Unknown - a Column by Wendy Caroline
You’ve somehow found someone to walk through the life that is a cystic fibrosis life without scaring them off. Great! Now, how the heck do you go about planning a wedding that is fun, special, and undamaging to your health? This is a dilemma that I dealt with…
Guilt. It’s a feeling I’ve had to process a lot lately. It’s something we all deal with from time to time. Maybe it’s due to a forgotten meeting, the dirty dishes piled up in the sink, or stumbling to bed without a kiss goodnight. Things happen, we are…
Cystic fibrosis has slowly, but surely, been creeping and nosing into parts of my life previously untouched. Just the other day I was watching a morning routine video on YouTube. All I could think was, “Wow. That looks like such a nice and productive morning. I should…
As I sat down to write my column for this week, a massive wave of writer’s block hit me. This has been plaguing me for a while. Great timing, right?! I started five different column pieces, each of which I would get a solid start…
The CF community is no stranger to the fact that medications that we put into our bodies, especially the powerful ones, do not come without risks. However, they are necessary evils to battle cystic fibrosis. Lately, my battle with cystic fibrosis has been riddled with these powerful,…
Editor’s note: “Path Unknown” is a new CF News Today column written by Wendy Caroline each Monday. My clinic used to hand out questionnaires at check-ins to see how patients were doing. I always chuckled to myself when I came across the question, “Do you have trouble…
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