Social Clips

Orkambi is a therapy that combines ivacaftor and lumacaftor to treat cystic fibrosis patients who have two copies of the mutated F508del gene. The oral CFTR modulators work by amending the CTFR protein that is faulty (due to the mutation in the gene), working to the root cause of the problem rather than…

  Fundraising is important to cystic fibrosis organizations like the U.K.’s Cystic Fibrosis Trust. The money helps support research into new therapies and possible cures, along with offering services to cystic fibrosis sufferers. There are many different types of fundraising events that appeal to the masses but some people want to really challenge…

The U.K. charity, Cystic Fibrosis Trust has launched the “Ask a Dad” video series, which tackles the subject of fertility and starting a family when you have CF. Michael and Amy discuss their own personal journey and the complications they faced due to Michael’s cystic fibrosis. MORE: Discover five facts about fertility…

This video from Big Think deals with some of the common myths surrounding depression. MORE: The symptoms of cystic fibrosis will vary from patient to patient, but there are commonalities in the way that CF affects the body. Learn more about them here. Dr. Patricia Deldin from the…

Seventeen-year-old Lily Royer was diagnosed with cystic fibrosis just before her first birthday. According to a report on CBS Denver, despite taking regular trips to the Colorado Children’s hospital for treatment and spending three hours each day doing necessary airway clearance, the Aspen, Colorado native was able to find time to design,…

Having a chronic illness presents many challenges for patients, not only in terms of managing the symptoms they suffer but also having to deal with people’s preconceived ideas about invisible illnesses. MORE: The symptoms of cystic fibrosis will vary from patient to patient, but there are commonalities in the…

Exercise is essential for people with cystic fibrosis. It helps build stronger muscles and improve lung function but it doesn’t have to be difficult. The Stanford Children’s Hospital has devised a simple four-week exercise challenge comprising of a few simple exercises that children (and adults) with cystic fibrosis…

The American Lung Association (ALA) helps thousands of people manage chronic lung diseases each year. Through education and training, it helps the recently diagnosed come to terms with their condition and discover how to best manage their disease. MORE: Do you know what lungs and a tennis court have…

In this video from Ashley’s Roses, Ashley talks about the emotional and mental aspects of having cystic fibrosis. She explains that people look at her and think that she’s a happy and positive person, but the truth is that she’s struggled with anxiety and depression since 2015, made worse…

The Cystic Fibrosis Foundation has recently launched a series of videos tackling the issue of mental health and cystic fibrosis. MORE: Learn more about the emotional wellness of children or adolescent CF patients. https://www.youtube.com/watch?v=gz7TEwa–po In this video, Dr. Anna Georgiopoulos explains that generally, anxiety in cystic fibrosis patients…