“There was a girl I was very interested in,” says Gunnar Esiason. “We were hanging out and, it’s a long story, but my feeding tube exploded on her.” “I was dating this guy, and he saw my port-a-cath and goes, ‘Oh my God, are you ok?…
https://www.facebook.com/CFNewsToday/videos/1375611545818786/ We first came across Josh Llewellyn-Jones when he started sharing details about his upcoming 24-hour fitness challenge to raise awareness of cystic fibrosis. The 29-year-old, from Cardiff in the U.K., is a fitness fanatic who refuses to let his cystic fibrosis get in the way. We…
Most CF patients already know the classic places or objects to be cautious around when it comes to germ precautions: remote controls, nebulizer cups, cell phones, hospital areas, etc. With the flu outbreak in epidemic levels and the general need for CF patients to be extra cautious of germs, it’s…
We tend to take our lungs for granted, that is until we develop breathing difficulties. But even when living with a chronic lung disease, it’s important to look after these vital organs as best we can. The Rush University Medical Center has some useful advice to…
After several decades of research into cystic fibrosis, there’s a wealth of weird information out there about the disease, its common bacteria, and medications. How many of these did you know already? 1. It is hypothesized that cystic fibrosis genetics have resistance to infectious diseases such as tuberculosis,…
Keeping physically fit and active is important for people living with cystic fibrosis, but there is no “one size fits all” approach. Many people start off with good intentions but their plans soon fall apart, often because they haven’t fully thought out all aspects of their routine or they try to…
Adventuring with cystic fibrosis can be a headache when dealing with typical travel planning on top of your health considerations: packing all meds and supplies, having a crisis plan, knowing airport security rules, and avoiding bacteria and viruses during the travel. Here are some tips to help ease the traveling…
Life with cystic fibrosis can be challenging, but it can also be extremely rewarding. Because cystic fibrosis patients shouldn’t meet each other face to face for fear of cross-infection, the online CF community is a close-knit group who all look out for each other and offer real support, guidance, and friendship. Some…
https://www.youtube.com/watch?v=x1ECsJmMs_Y In this Making it Matter podcast, Gunnar Esiason and Julia Rae take listeners through some of the dos and don’ts of going off to college when you have cystic fibrosis. MORE: How teens with cystic fibrosis make the transition from high school to college The duo talks through their own…
This Synergy Vision video is all about Caz — a cystic fibrosis patient who was diagnosed in 1986 at just 18 months old. MORE: Eight tips to manage cystic fibrosis At the time of her diagnosis, Caz’s parents were told…
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