Some patients suffering with CF are celebrities or became celebrities due to their fight against the disease. Learn more about Charles Michael Duke and his Wait for a Lung Transplant. In this video by Alt Shift X watch “a visual explanation of lung transplants.” Learn more about cystic…
Patients and loved ones affected by the burden of cystic fibrosis (CF) may want to take action and do something to fight this chronic and progressive disease. However, it’s not always easy to find ways to do so. Becoming an advocate for cystic fibrosis may be an option for some…
One patient so happy with #CysticFibrosis drug Kalydeco she got a tattoo of molecular structure. #ECRD2016 pic.twitter.com/Qr2eiS2gG1 — Avril Kennan (@AvrilKennan) May 28, 2016…
https://www.youtube.com/watch?v=3ARdU_FVAgA Orkambi is a combination therapy for treatment of cystic fibrosis. The FDA approval for the therapy was announced on July 2nd, 2015. Learn more about Orkambi here. In this StratAcuity: The Science of People …
A recent study found that individuals carrying the mutated gene for cystic fibrosis (CF) show an increased risk for asthma, particularly CF carriers from Asian countries. In this video by Cystic Fibrosis Victoria, Dr. Sean Fabri explains all about carrier screening including the science behind it, its implications, and the many options…
n Fight Like a Boss is a documentary that follows Nick DiBrizzi Jr., a cystic fibrosis patient, while he waits for his double lung transplant. “This story is one of love, support, hope, family and never giving up.” Another amazing documentary you can’t miss is: “Can’t See Sh*t”. This video tells the…
Meet Morgan Grindstaff, also known as Cystik1. The 25-year-old YouTuber has been battling cystic fibrosis (CF). In this video, listen to him recite a strong and emotional spoken word piece about his struggle. Here’s 10 Cystic Fibrosis Channels You Must Follow In his other videos, he talks…
In this Cystic Fibrosis Foundation video, hear why 54-year-old cystic fibrosis patient Linda Bowman participates in clinical trials. Read some frequently asked questions (FAQ) pertaining to clinical trials, and what the process entails here. “We are on the road to finding a cure. And the more CF…
Early this year, Lauren Rowe shared her personal story of one of the many downsides of dealing with an invisible illness. The story became an internet phenomenon with many people sharing the post wanting to raise more awareness to these hidden conditions that are not easy to deal with. Lauren…
Between all the complications and difficulties that having CF entails, it is always possible to find amazing stories like the one about the cystic fibrosis (CF) patient who traveled the country despite his condition. In this Cystic Fibrosis Foundation video, watch Ginny Drapeau, BSN, RN, CCRP, research coordinator at the Central…
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