Social Clips

Peter and Mary Frey are a young couple just like any other and starting a family together. However, there is one thing that makes their family different from the average American household. Mary suffers from cystic fibrosis (CF). Read more about their amazing story here.  In this The Frey Life video, watch…

What is CFTR? Cystic fibrosis transmembrane conductance regulator (CFTR) is a gene that regulates the production of a protein which works as a channel for the membrane of cells in the body that create mucus, saliva, sweat, tears or digestive enzymes. This conductor leads particles, that are negatively charged and…

In this Beau Rich video, recap the amazing journey that this cystic fibrosis (CF) patient took back in 2014 when traveling all over America and maintaining his CF care with new mobile medical devices. One of those devices, as we can see in the video,…

A new social media campaign was launched in Ireland to advocate for the approval of Orkambi for cystic fibrosis (CF) patients in the country. The drug combines the compounds ivacaftor and lumacaftor. Orkambi, which is a novel therapeutic approach designed to treat the root cause of cystic fibrosis instead of just the severity of symptoms, was approved…

Cystic fibrosis (CF) is one of the most common lung diseases in children and is a life-threatening disorder that causes, among other things, lung infections and breathing difficulties. Breathing is the most important thing your body does. Without breathing, you simply cannot live. It’s something you do without even thinking about —…

Do you remember the #Strawfie Challenge? Do you feel like people around you don’t understand what you go thorough as a cystic fibrosis (CF) patient? In this Breathe With Me Strawfie Challenge video, the creators of the #Strawfie Challenge will help you spread the…

Charles Michael Duke is a 21-year-old singer and actor from Bournemouth, England, who was diagnosed with cystic fibrosis (CF) at birth. In this interview, Charles Michael Duke speaks about his struggle with the genetic and chronic disease as well as the difficulties of waiting for a potentially life-saving double lung…

https://www.youtube.com/watch?v=Eqa-_tHf8LQ Patients diagnosed with cystic fibrosis (CF) may need to spend quite a bit of time in hospital for examinations or treatments, which is why it’s important for patients to realize what they may need and pack ahead. In this video, a 16-year-old cystic fibrosis sufferer and vlogger shares her own…

Some cystic fibrosis symptoms can make it difficult for patients to exercise, but studies have determined that regular physical activity can have a significant impact on improving a patient’s quality of life. Read about an innovative research center that provides tailored physical activity and exercise regimens for young…

Here’s a list of some of the many online resources that might be able to help you dealing with cystic fibrosis. Keep in mind the importance of finding those that best suit you. 1. CF2Chat   CF2Chat is a forum and chat website for people with cystic fibrosis, featuring…