Social Clips

We asked patients with cystic fibrosis and their families if they had any “life hacks” to share with the community that have made their lives easier. Below are some of our favorite responses (names removed for privacy): Hygiene and sanitation “When I take a shower, I never tilt…

In this video, travel along with cystic fibrosis patient Beau Rich on his amazing 2014 hiking, driving, skateboarding and swimming journey across the United States while maintaining CF care with new mobile medical devices. As seen in the video, one of the devices is an …

With the holiday season in full swing, it’s the perfect opportunity to take a look back at 2017. It’s been a year full of ups and downs, and while there were definitely quite a few low moments, there were certainly quite a few highs. To celebrate the year that was,…

Dr. Gwen A. Huitt, an infectious disease doctor with a special interest in mycobacteria and cystic fibrosis, spoke in our last article about what aspiration is and how it’s dangerous to CF patients. “Aspiration is defined as any liquid, substance, or foreign body that gains access (below the vocal cords)…

It’s interesting to see characters with cystic fibrosis in popular media — even if the disease isn’t always portrayed realistically. Check out these films, shows, and books where cystic fibrosis appears, and how the disease is depicted in each one: Foreverland | Film | 2011 In…

Dr. Gwen A. Huitt is an infectious disease doctor at National Jewish Health with a special interest in mycobacteria, bronchiectasis, and cystic fibrosis. Here, she talks to us about the hidden dangers of a major medical issue she feels doesn’t receive the attention it needs in the CF community…

If you have a chronic lung condition, you’ll need to protect your lungs from being further irritated by unhealthy air. We’ve put together a list of ways to help protect your lungs against unhealthy air using information from the American Lung Association. Check the daily air pollutant forecasts. …

In their minds, cystic fibrosis patients are cycling through an African safari, exploring the animals and environment. In reality, they’re sitting atop a bike machine with a thick, black visor engulfing half their face. The University Hospital Llandough in the U.K. is…

  Fundraising is important to cystic fibrosis organizations like the U.K.’s Cystic Fibrosis Trust. The money helps support research into new therapies and possible cures, along with offering services to cystic fibrosis sufferers. There are many different types of fundraising events that appeal to the masses but some people want to really challenge…

A wristband has been designed to help doctors detect diseases like cystic fibrosis and diabetes. The wearable device has a mechanism that can determine the levels of sodium and chloride in a person’s sweat — two properties which, if elevated, can indicate cystic fibrosis. MORE: Four common misconceptions about cystic fibrosis According…