Cystic Fibrosis (CF) is a chronic disease that affects the secretory glands, which are responsible for producing mucus and sweat. In these patients the mucus ends up accumulating in the lungs and airways, causing a blockage and preventing patients from properly breathing, as well as promoting the growth of bacteria and the…
Social Clips
A Letter to My Wife’s Donor Family by Craig Giddens
In this Cystic Fibrosis Foundation video, listen as Craig Giddens reads his touching letter to his wife’s donor family. “She has been blessed with Amy’s breath and she sounds like an angel.” To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on…
In this Cystic Fibrosis Trust video, learn more about the “Strategic Research Centre lead by Professor Jane Davies, seeking to address the three major challenges posed by pseudomonas aeruginosa.” To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all…
Ricky’s Story: Lung Transplant for Cystic Fibrosis
“Ricky was born with cystic fibrosis and needed a lung transplant. Learn how Kindred Hospital Houston Medical Center helped prepare Ricky for his lung transplant and helped save his life.” To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all…
After cancelling all his future meet and greets, Justin Bieber made an exception for one fan: Sarina Costanzo, a 14 year-old-girl who’s been living with cystic fibrosis. Watch this FOX4KC interview where she sat down with Katie Banks to tell us what happened thanks to the help of the Make-a-Wish…
Living a Healthy Adult Life with Cystic Fibrosis
In this Cystic Fibrosis Foundation video, watch Ginny Drapeau, BSN, RN, CCRP, research coordinator at the Central Connecticut CF Center and manager of the Pathways to Lifelong Health DVD series, talk about living a healthy adult life with cystic fibrosis. “We hope that you will see that you are not alone as…
In this Gifted Life video, watch part two of a Q&A session about a transplant journey. “I had to give up a lot of things when I became very unwell, and the biggest thing of all was my independence. For me to ask people for help, for not just day…
In this Cystic Fibrosis Foundation video, learn more about the importance of having a support system. “There will be downturns, but it is in those times that everybody who loves you just comes through and helps you get you back on track” To learn more about cystic fibrosis,…
Remember the “I’ve Got Cystic Fibrosis” song? In this Cystic Fibrosis Trust video, watch its author and singer Charles Michael Duke, who also doubles as an actor and vlogging extraordinaire, talking about winning one of the Helen Barrett Bright Ideas awards. “Thank you so much to the Cystic Fibrosis Trust…
Cystic fibrosis (CF) is among the most common and severe genetic diseases in the United States, with about 1,000 new cases every year. The disease is caused by a defect in the cystic fibrosis transmembrane conductance regulator (CFTR) gene and it affects the secretory glands, which are responsible for the production…
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