https://youtu.be/I-YKijMYH9s This video is the result of an assignment given to first year UCD Radiography & Medicine students for a module on Healthcare Imaging & Information Systems. The students created a resource to inform patients about the experience they could expect. Learn more about CF here: https://bit.ly/1nOGoQ2…
In this video by the Cystic Fibrosis Foundation, hear how Melissa Shiffman, an adult with CF, shares her personal story when she advocates for the disease. To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news here:…
Natalie Woolf, 7-time world champion exhibition dancer and recipient of the Carl Alan Award, didn’t want to disclose her fight with cystic fibrosis (CF) for fear of not being judged on merit, but by pity. Now, changed by CF, she shares her journey with the world and invites each of…
Meet Miranda Porche. People who suffer from rare diseases, like cystic fibrosis (CF), often have to spend a lot of time in and out of hospitals while doctors try to figure out what is wrong.  In this video, Miranda describes herself as a “professional guinea pig”. Learn more about…
In this The CFurther “Empowering Self Care From a Young Age” webcast watch some “practical advice to caregivers on finding the right balance between shifting the responsibilities of managing cystic fibrosis (CF) treatments to their children, while still providing needed support. The expert panel includes Kat Quinn, mother to…
“Over the course of five years, the Up for Air documentary team followed Jerry Cahill, a CFer in his fifties, as he lived his everyday life; an everyday life unique compared to many. Throughout this documented journey, Jerry demonstrates how a positive attitude, relentless self-discipline, and physical perseverance allow…
In this initiative by Cystic Fibrosis Canada, tune in on Thursday, March 10 at 2pm EST for a live question and answer session about traveling with cystic fibrosis (CF). “Kate Gent, nurse at St. Michael’s Hospital Adult CF Clinic and Louise Taylor, nurse at Sick Kids CF Clinic will be…
In this Cystic Fibrosis Foundation video, corporate leaders answer the question: “Why Great Strides?” To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news here: https://bit.ly/1jNDqsz…
In this Boomer Esiason Foundation video, Jerry Cahill, cystic fibrosis (CF) patient for almost 50 years, gives some advice on how to prepare to leave your stationary bike at home and go biking outdoors. Learn more and keep updated about CF here: https://bit.ly/1nOGoQ2…
“The Cystic Fibrosis Trust is looking for young volunteers from across the UK to inform on the type of support offered and the way in which it is provided as part of a Youth Advisory Group.” To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs…
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