Children with cystic fibrosis can have a hard time at school and it’s useful for teachers to be aware of the specific barriers these students face. In this video from KidsHealth, Charly explains. Keep up to date on the most recent news about cystic fibrosis here: https://bit.ly/1nOGoQ2…
Social Clips
In this video from the Cystic Fibrosis Foundation, you can listen to parents of children with cystic fibrosis (CF). Learn how they are able to manage their children’s disease and balance their challenges to live normal daily lives. Keep updated on all the latest CF news here: https://bit.ly/1nOGoQ2…
To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF Foundation news here: https://bit.ly/1ODujry…
Assistant Professor Sigrid Ladores, PhD, from the School of Nursing, University of Alabama, Birmingham, and doctoral student Leigh Ann Bray are developing a study entitled “Female Fertility in the Age of New CFTR-Modulating Drugs.” The main focus of the research study will be to assess female…
Last week’s hot topic on Cystic Fibrosis titled Potential Cystic Fibrosis Therapy Gets FDA Fast Track Approval, Clinical Tests to Follow was written by Carolina Henriques. The article is focused on the announcement by Proteostasis Therapeutics, Inc., that it recently received Fast Track Designation from the U.S. Food…
The Iron Boy saved Sydney and rescued a kidnapped Make a Wish reporter. Domenic, a 9-year-old Australian boy suffering from cystic fibrosis (CF), had his dream come true when he was transformed into his favorite superhero, flown by helicopter to Police Headquarters and defeated Ultron in a super secret mission. Domenic was…
https://youtu.be/-b1Q7PoNgxM Do you remember Caleigh Haber? A few months ago, we told you about Caleigh’s fight to breathe with cystic fibrosis (CF). Caleigh has now undergone transplant surgery and is the proud owner of a new pair of lungs. Find out what happened since. Keep update on all the latest CF…
Recently Lauren Rowe shared her personal story of one of the many downsides of dealing with an invisible illness. The story became a internet phenomenon with many people sharing the post wanting to raise more awareness to these hidden conditions that are not easy to deal with. Lauren has…
Gymnast Sonny Lang who had ‘heart and lungs of 80-year-old’ dies following brave Cystic Firbosis battle https://t.co/xdgrQt0Bhn — cf/Aware (@CFAware) February 9, 2016 Sonny Lang was diagnosed with cystic fibrosis (CF) when she was only 13 months old. At age four she…
In this video by the Cystic Fibrosis Trust, learn more about Ashley’s Story. Did you know one in three people with cystic fibrosis on the lung transplant waiting list will die while waiting for a donor lung? Ashley Harris Moore speaks about fears for her baby and herself and…
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