Victorious - a Column by Brad Dell

hope, funeral, social, ableism, funeralBrad Dell is a Deaf 27-year-old with cystic fibrosis. He received a double-lung transplant from UC San Francisco in January 2017, then cochlear implants nine months later. He now lives in Hawaii, where he was raised. Usually he’s traveling the world, chugging coffee, mentoring college students, or studying theology. Otherwise, he’s working as the director of columns at BioNews, the publisher of CF News Today. (OK, he’s still drinking coffee while he works.) He writes to undo the taboo surrounding lung transplantation. Catch him on Instagram at @coffee.cats_

How personifying cystic fibrosis made me a monster slayer

Mom raised me to be a hungry reader, so it wasn’t long until I explored one of her favorite genres, Southern Gothic. Tales from this corner of the library are identified by distorted realities, eerie supernaturalism, eccentric characters, and sometimes abrupt violence. These elements are often bound together to critique…

For Me, Fear of the Unknown Is Harder Than Fighting Disease

For two decades, plummeting pulmonary function percentages terrorized me, weight flew from my body, and my diagnoses list stretched longer than a CVS receipt. Trips to the clinic featured grim reports detailing my body’s ruin: estimated organ expiration dates, fistfuls of prescription slips to counteract the destructive side…

Are Emotional Spoon Shortages Driving Your Exhaustion?

I’m beginning to rethink the sources of my fatigue. Yes, sickness and physical activity are still real sources of exhaustion, but I’m realizing I’ve neglected a deeper flavor of struggle.   Many of us sick folk are familiar with the “spoon theory.” The analogy goes…

Shifting Through Fight, Flight, Freeze, Fawn … Healing

Now, years past the worst of it all — you know, the health crises — I feel safe enough to ponder my trauma and its lingering tolls. Psychologists identify four trauma responses: fight, flight, freeze, fawn. The fight response triggers aggression, flight manifests as avoidance, freeze as inaction, and…

Stories Form My Identity, and I Crave My Truest Identity

There’s a person I really like. (I’m her boyfriend, it’s nice.) And when I really like someone, I drop my defenses. We were discussing the building blocks of our identity, and I realized mine mostly derive from cystic fibrosis, deafness, and lung transplant. I wondered what it would look like…