October 23, 2020October 23, 2020
$200K Donation Will Support Respiratory Care on CF, Other Lung Disorders
cystic fibrosis, News
The National Board for Respiratory Care (NBRC) has launched “CHOOSE ONE: Every Breath Counts Campaign,” a fundraising initiative intended ... Read more
October 22, 2020October 22, 2020
CFF Award to Advance Synspira’s Treatments for Malabsorption, Lung Infections
cystic fibrosis, News
The Cystic Fibrosis Foundation (CFF) is awarding Synspira Therapeutics up to $14 million in additional funding to support the ... Read more
October 21, 2020October 21, 2020
Inhaled Tobramycin Effectively Treats Initial P. aeruginosa Infections in CF
cystic fibrosis, News
Inhaled tobramycin alone works as well at eradicating an initial infection by Pseudomonas aeruginosa bacteria in people with cystic ... Read more
October 20, 2020October 16, 2020
To the Doctors Who Didn’t Listen
Columns, Life in the Grey – a Column by Bailey Anne Vincent
To the doctors who didn’t listen to me: You were wrong. I remember the time I arrived in the ... Read more
October 20, 2020October 20, 2020
FDA Clears Clinical Trial of AP-PA02 Phage Therapy for P. aeruginosa Infections
cystic fibrosis, News
The U.S. Food and Drug Administration (FDA) cleared Armata Pharmaceuticals‘ investigational new drug (IND) application for a Phase 1b/2a ... Read more
October 19, 2020October 19, 2020
Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say
News, syndicated
A majority of rare disease patients using telehealth during the COVID-19 pandemic thought the experience positive, and many would like ... Read more
October 16, 2020October 15, 2020
True Story: I Got Fired for Being Sick
Columns, Valiant Voice – a Column by Lara Govendo
I remember what it felt like to get fired for being sick: that pit in the middle of my ... Read more
October 16, 2020October 16, 2020
Trial Enrolling Patients With Severe Digestive Enzyme Deficiency in Europe
cystic fibrosis, News
A Phase 2 clinical trial investigating MS1819 in combination with stable pancreatic enzyme replacement therapy (PERT) to treat exocrine pancreatic insufficiency (EPI) in people ... Read more
October 15, 2020October 15, 2020
New Inhaled Therapy IONIS-ENAC-2.5Rx Shows Promise in Phase 1/2a Trial
cystic fibrosis, News
Ionis Pharmaceuticals’ investigational inhaled therapy IONIS-ENAC-2.5Rx showed promise in a Phase 1/2a study as a potential new treatment ... Read more
October 14, 2020October 14, 2020
Toronto Scientist Wins Award for Work Into Alternative Way of Treating CF
cystic fibrosis, News
Medicine by Design, which supports work in regenerative medicines, gave a 2020 New Ideas Awards to support a researcher ... Read more
October 13, 2020October 14, 2020
If You’ve Lost Hope, Read This
Columns, Victorious - a Column by Brad Dell
I should’ve died years ago, but I’m too damn competitive. A doctor said I’d cross my high school graduation ... Read more
October 13, 2020October 13, 2020
Trial of Oral CB-280 for Chronic Lung Infections in CF Enrolling Across US
cystic fibrosis, News
A Phase 1b clinical trial evaluating Calithera Biosciences’ investigational oral therapy CB-280 is recruiting adults with cystic fibrosis (CF) ... Read more

October 23, 2020October 23, 2020

$200K Donation Will Support Respiratory Care on CF, Other Lung Disorders

cystic fibrosis, News

The National Board for Respiratory Care (NBRC) has launched “CHOOSE ONE: Every Breath Counts Campaign,” a fundraising initiative intended to protect and improve the lives of people who need ... Read more

October 22, 2020October 22, 2020

CFF Award to Advance Synspira’s Treatments for Malabsorption, Lung Infections

cystic fibrosis, News

The Cystic Fibrosis Foundation (CFF) is awarding Synspira Therapeutics up to $14 million in additional funding to support the development of two therapies to address complications of cystic fibrosis (CF), ... Read more

October 21, 2020October 21, 2020

Inhaled Tobramycin Effectively Treats Initial P. aeruginosa Infections in CF

cystic fibrosis, News

Inhaled tobramycin alone works as well at eradicating an initial infection by Pseudomonas aeruginosa bacteria in people with cystic fibrosis (CF), and its use in combination with an oral fluoroquinolone, such ... Read more

October 20, 2020October 16, 2020

To the Doctors Who Didn’t Listen

Columns, Life in the Grey – a Column by Bailey Anne Vincent

To the doctors who didn’t listen to me: You were wrong. I remember the time I arrived in the ER six years ago, a place I mostly refuse to ... Read more

October 20, 2020October 20, 2020

FDA Clears Clinical Trial of AP-PA02 Phage Therapy for P. aeruginosa Infections

cystic fibrosis, News

The U.S. Food and Drug Administration (FDA) cleared Armata Pharmaceuticals‘ investigational new drug (IND) application for a Phase 1b/2a clinical trial of AP-PA02 for the treatment of the Pseudomonas ... Read more

October 19, 2020October 19, 2020

Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

News, syndicated

A majority of rare disease patients using telehealth during the COVID-19 pandemic thought the experience positive, and many would like the option of continuing its use in future appointments, a ... Read more

October 16, 2020October 15, 2020

True Story: I Got Fired for Being Sick

Columns, Valiant Voice – a Column by Lara Govendo

I remember what it felt like to get fired for being sick: that pit in the middle of my belly that caused my mouth to go dry, my voice ... Read more

October 16, 2020October 16, 2020

Trial Enrolling Patients With Severe Digestive Enzyme Deficiency in Europe

cystic fibrosis, News

A Phase 2 clinical trial investigating MS1819 in combination with stable pancreatic enzyme replacement therapy (PERT) to treat exocrine pancreatic insufficiency (EPI) in people with cystic fibrosis (CF) is actively recruiting participants in Europe, AzurRx BioPharma, the ... Read more

October 15, 2020October 15, 2020

New Inhaled Therapy IONIS-ENAC-2.5Rx Shows Promise in Phase 1/2a Trial

cystic fibrosis, News

Ionis Pharmaceuticals’ investigational inhaled therapy IONIS-ENAC-2.5Rx showed promise in a Phase 1/2a study as a potential new treatment for cystic fibrosis (CF), the company announced, citing trial data. That ... Read more

October 14, 2020October 14, 2020

Toronto Scientist Wins Award for Work Into Alternative Way of Treating CF

cystic fibrosis, News

Medicine by Design, which supports work in regenerative medicines, gave a 2020 New Ideas Awards to support a researcher exploring an alternative pathway to the CFTR protein as a ... Read more

October 13, 2020October 14, 2020

If You’ve Lost Hope, Read This

Columns, Victorious - a Column by Brad Dell

I should’ve died years ago, but I’m too damn competitive. A doctor said I’d cross my high school graduation stage in a wheelchair, toting supplemental oxygen. “Challenge accepted,” I ... Read more

October 13, 2020October 13, 2020

Trial of Oral CB-280 for Chronic Lung Infections in CF Enrolling Across US

cystic fibrosis, News

A Phase 1b clinical trial evaluating Calithera Biosciences’ investigational oral therapy CB-280 is recruiting adults with cystic fibrosis (CF) and chronic airway infections at several U.S. sites. The trial’s ... Read more