31 Days of CF: Tiffany’s Story
31 days of CF
View this post on Instagram Day 12 of 31 Days of CF Topic: Recieving a CF diagnosis, being a mom to a child with CF As ... Read more
Kalydeco Shows Long-term Efficacy in CF Patients in Real-world Setting
cystic fibrosis, News
Kalydeco (ivacaftor) preserved lung function, improved the nutritional status, and reduced hospital visits and chronic bacterial infections in people with cystic fibrosis (CF) when administered for up to five years ... Read more
31 Days of CF: Kate’s Story
31 days of CF
View this post on Instagram Day 13 of 31 Days of CF Topic: Opening up about CF I’m Kate Eveling, and I’m 25 years old. I’ll ... Read more
‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy
cystic fibrosis
People with rare diseases know that the right government policies can make a big difference in the quality of their own lives, and those of their caregivers. But most ... Read more
How to Overcome the Scourge of Confirmation Bias
Columns, Mutations & Conversations - a Column by Tré LaRosa
Have you ever been caught up in a heated discussion with someone who continually refers to stories that confirm their beliefs? Or had a conversation in which it seemed ... Read more
Eluforsen Found to be Safe for Adults with Cystic Fibrosis Caused by F508del Mutation, Study Reports
cystic fibrosis, News
The experimental treatment eluforsen is safe for adults with cystic fibrosis (CF) caused by a mutation called F508del, a new study reports, supporting further investigation and development of the ... Read more
31 Days of CF: Steven’s Story
31 days of CF
View this post on Instagram Day 14 of 31 Days of CF Topic: Working Full Time In life expectations are placed upon us to achieve milestones, and ... Read more
31 Days of CF: Maddie’s Story
31 days of CF, News
View this post on Instagram Day 16 of 31 Days of CF Topic: Balancing work, grad school, and health Here are @saltymaddie93 experiences: In fall ... Read more
31 Days of CF: Jenny’s Story
31 days of CF
View this post on Instagram Day 17 of 31 Days of CF Topic: My child’s knowledge of my CF This is @jenny_livingston experience: My nine-year-old daughter, ... Read more
Bronchitol, Inhalation Powder for CF Patients, to Enter Swiss Market
cystic fibrosis, News
EffRx Pharmaceuticals announced that it has signed an exclusive license agreement with Pharmaxis to register and commercialize Bronchitol (mannitol) for the treatment of cystic fibrosis (CF) in Switzerland. According to ... Read more
31 Days of CF: Catherine’s Story
31 days of CF
View this post on Instagram Day 20 of 31 Days of CF Topic: Guide to University The lovely @catheriine98 is currently studying to be a school ... Read more
Murepavadin Antibiotic Well-tolerated by Animals Infected with Pseudomonas Aeruginosa, Preclinical Data Show
cystic fibrosis, News
Murepavadin (POL7080), Polyphor‘s lead investigational antibiotic targeting Gram-negative bacteria, behaved as expected and was well-tolerated when administered to mice harboring a lung infection caused by Pseudomonas aeruginosa, data from ... Read more