January 22, 2020January 22, 2020

CF Foundation Awards $700K to Support Work into Treatments for B. cepacia Infections

cystic fibrosis, News

The Cystic Fibrosis (CF) Foundation awarded a nearly $700,000 contract to Calibr, the drug discovery and development arm of Scripps Research, to support projects aiming to identify compounds that could ... Read more

January 21, 2020January 22, 2020

Help Us Improve Our Site!

News

We are always trying to provide a better, more relevant website to meet the needs of our readers. The best way to do that is to hear from people ... Read more

January 21, 2020January 22, 2020

Enterprise’s ETX001 Targeting Chloride Channel Shows Promise for CF in Preclinical Studies

cystic fibrosis, News

Enterprise Therapeutics‘ experimental compound called ETX001 was able to increase airway fluid secretion and mucus clearance in preclinical models of cystic fibrosis (CF), a study reports. ETX001 is a ... Read more

January 20, 2020January 17, 2020

I Keep Forgetting CF Is Invisible

Columns, Path Unknown - a Column by Wendy Caroline

I often hear, “CF does not define me.” However, while cystic fibrosis (CF) does not define me, it is a part of me. It has helped shape who I ... Read more

January 20, 2020January 16, 2020

Reflecting on My Favorite Columns of 2019

Columns, Mutations & Conversations - a Column by Tré LaRosa

2019 has given me much to reflect upon, including which of my columns are my favorites from the year. My chosen columns convey what I set out to do ... Read more

January 20, 2020January 20, 2020

CF Advocate Andy Lipman Offers Hope to Others With Warrior Project

cystic fibrosis, News

Cystic fibrosis (CF) advocate, author, Olympic torchbearer, and motivational speaker Andy Lipman didn’t get involved in the CF community — even though he himself had the disease — until a ... Read more

January 17, 2020January 15, 2020

I Let CF Win When I Gave Up My Veterinarian Dream

Becoming Visible by Elizabeth Rogers, Columns

It’s hard not to dwell on all of the future plans I might have had if cystic fibrosis (CF) hadn’t entered my life. Things seemed limitless as a child. ... Read more

January 17, 2020January 17, 2020

Two Pivotal Phase 3 Trials of Proteostasis’ CF Triple Combo Therapy to Open in 2020

cystic fibrosis, News

Proteostasis Therapeutics announced plans to open two Phase 3 clinical trials of its triple combination therapy candidate for cystic fibrosis this year, after a meeting with the chief healthcare regulatory office ... Read more

January 16, 2020January 16, 2020

I’m Taking a Break from Sharing My Story

Columns, Work that Works - a Column by Elly Aylwin-Foster

I don’t want to talk about it anymore. I’ve gone from being an out-and-proud chronic illness advocate to someone craving something akin to a total cystic fibrosis blackout. I ... Read more

January 16, 2020January 16, 2020

Organ Care System Used at Florida Hospital Expected to Make More Lungs Suitable for Transplant

cystic fibrosis, News

Tampa General Hospital (TGH) announced that is the first in Florida to use an organ care system that allows donor lungs, hearts, and livers to stay viable and working ... Read more

January 15, 2020January 15, 2020

Approaches Like Yoga, Along with Meds, Key to Managing CF Pain, Experts Say

cystic fibrosis, News

Tiffany Rich is something of a celebrity in the world of cystic fibrosis (CF). Diagnosed at birth, she graduated college while awaiting a double lung transplant. The co-founder of ... Read more

January 14, 2020January 14, 2020

Trikafta Will Be ‘Life-Transforming,’ Especially for Younger CF Patients, Researchers Say

cystic fibrosis, News

Trikafta is expected to be a “game-changing” therapy for cystic fibrosis (CF), especially for younger patients, say researchers at Children’s Hospital of Richmond at Virginia Commonwealth University (VCU), who were ... Read more