Medical Centers

Keck School of Medicine Lockups CMYKCenter for Cystic Fibrosis for Adult Care at the Keck School of Medicine

 

Cystic Fibrosis Center at StanfordCystic Fibrosis Center at Stanford is an integrated disease management program that follows patients from diagnosis through adulthood

CNMC_GradBear_DotsPuncCystic Fibrosis Center from the Children’s National Health System is a level III CF center, a Cystic Fibrosis Foundation designated care center and the only one in Washington, DC

 

Cystic Fibrosis Clinic at University of Texas Southwestern Medical CenterCystic Fibrosis Clinic at University of Texas Southwestern Medical Center

 

Gunnar Esiason Adult Cystic Fibrosis and Lung Program

 

Gunnar Esiason Adult Cystic Fibrosis and Lung Program in New York

 

 

Maine Medical CenterMaine Medical Center (MMC) is a CF teaching center accredited by the Cystic Fibrosis Foundation

 

Mike McMorris Cystic Fibrosis Research and Care Center

 

Mike McMorris Cystic Fibrosis Research and Care Center at Children’s Hospital Colorado

 

 

Nebraska Regional Cystic Fibrosis CenterNebraska Regional Cystic Fibrosis Center, located at both Children’s Hospital & Medical Center and the University of Nebraska Medical Center (UNMC), is the only Cystic Fibrosis Foundation accredited center in the region


University of California San FranciscoUniversity of California San Francisco (UCSF) Cystic Fibrosis Center, certified by the national Cystic Fibrosis Foundation

 

University of Chicago Cystic Fibrosis CenterUniversity of Chicago Cystic Fibrosis Center

 

University of MississippiUniversity of Mississippi Medical Center’s Cystic Fibrosis Center

Organizations and Foundations

Blooming Rose Foundation

Blooming Rose Foundation was created to give hope to families immediately following cystic fibrosis diagnosis

Boomer Esiason Foundation

Boomer Esiason Foundation is named after the retired American football quarterback Norman Julius “Boomer” Esiason that suffers from the disease and works to raise awareness and funding for the CF community

Breathe 4 Tomorrow Foundation

Breathe 4 Tomorrow Foundation‘s mission is to “make life for those living with Cystic Fibrosis easier one breath at a time,” and the organization is focused on helping CF families with their financial struggles

Cystic Fibrosis Foundation

 

Cystic Fibrosis Foundation is the largest non-profit organization in the country focused on finding a cure for cystic fibrosis

 

Cystic Fibrosis Foundation Therapeutics Inc.

Cystic Fibrosis Foundation Therapeutics, Inc. is the CF Foundation’s nonprofit drug discovery and development affiliate

 

Cystic Fibrosis Lifestyle Foundation

 

Cystic Fibrosis Lifestyle Foundation was founded in 2003 to help patients increase their quality of life through exercise, mentor support and social interaction

 

 

Cystic Fibrosis-Reaching Out Foundation

 

Cystic Fibrosis-Reaching Out Foundation is an all-volunteer benevolent organization to help CF patients and families with financial and educational resources

 

Cystic Fibrosis Research, IncCystic Fibrosis Research, Inc. dedicates to funding scientific investigation to find a cure, as well as more effective treatment for CF

 

Elizabeth Nash FoundationElizabeth Nash Foundation was created in 2003 to honor the life and death of the CF sufferer Elizabeth Nash and it helps support CF programs and research

Emily's Entourage

 

 

Emily’s Entourage is a nonprofit organization that raises awareness and funding to help find a cure for rare mutations of cystic fibrosis

 

 

Help One Love One

 

Help One Love One provides nutritional support to adults with cystic fibrosis who receive treatment at the University of Minnesota Cystic Fibrosis Center

Liv for a CureLiv for a Cure works to support research and find a cure for CF

 

Lungs for Life Foundation

 

 

Lungs for Life Foundation dedicates to providing education and support to the cystic fibrosis and lung transplant communities

 

 

Mauli Ola Foundation

 

Mauli Ola Foundation is based in Hawaii and offers children with CF an alternative and fun form of treatment with surf lessons

 

 

National Cystic Fibrosis Awareness CommitteeNational Cystic Fibrosis Awareness Committee helps to advance the public awareness of the genetic disease through statements, support groups, fundraising and message boards

 

Rock CF FoundationRock CF Foundation is a nonprofit corporation, founded and led by Emily Schaller with the purpose of increasing the quality of life for people with CF

 

Take A Breather Foundation

 

Take A Breather Foundation works since 2012 to fulfill wishes for children living with cystic fibrosis

Cystic Fibrosis WorldwideCystic Fibrosis Worldwide is a non-profit organization based in Massachusetts, USA and Izmir, Turkey, which works with 67 member countries since 2002 to increase information on CF

Cystic Fibrosis Trust

Cystic Fibrosis Trust is the only UK-wide charity focused on both helping patients with cystic fibrosis and supporting research in the field

 

Cystic Fibrosis Australia

 

Cystic Fibrosis Australia

 

Cystic Fibrosis Canada

 

Cystic Fibrosis Canada

 

Cystic Fibrosis New Zealand

 

Cystic Fibrosis New Zealand

Pharmaceutical Companies

Anthera PharmaceuticalsAnthera Pharmaceuticals

 

Concert PharmaceuticalsConcert Pharmaceuticals

 

Corbus Pharmaceuticals

 

Corbus Pharmaceuticals

 

La Jolla Pharmaceutical

 

La Jolla Pharmaceutical

Laurent Pharmaceuticals

 

Laurent Pharmaceuticals

Nivalis Therapeutics

 

Nivalis Therapeutics

 

Raptor PharmaceuticalRaptor Pharmaceutical

 

Serendex PharmaceuticalsSerendex Pharmaceuticals

 

Vertex Pharmaceuticals

 

Vertex PharmaceuticalsOrkambi and Kalydeco (Ivacaftor)

 

Online Resources

CF2Chat

 

CF2Chat is a forum and chat website for people with cystic fibrosis, featuring as well news, therapy and health tips, a photo gallery and a recipe page

 

CF Infants and Toddlers

 

 

CF Infants and Toddlers is a social media group for parents and caregivers of children with CF to share information and seek support

 

 

 

CF Living

 

CF Living offers webcasts and other resources for parents of children with cystic fibrosis in different stages of growth

 

 

 

CF RoundtableCF Roundtable provides information to adults with cystic fibrosis on the nature and progression of the disease, as well as on the latest research advancements

CF Solutions

 

 

CF Solutions offers pharmacy and nursing services to patients with financial difficulties in Oklahoma

 

 

CysticFibrosiscomCysticFibrosis.com is an online community for people concerned with cystic fibrosis and it provides interactive forums and blogs to find support and share information

 

mayologo

 

Cystic Fibrosis Coping Skills is a non-profitable online course designed by the Mayo Clinic to provide information on diagnosis and treatment of CF

 

 

 

cystic LCystic-L is a free email service designed for exachanging information and support specific about cystic fibrosis, including not only patients, but also families and loved ones

Cystic Life

 

Cystic Life is an online community for patients to find other struggling with the same condition

 

 

Daily Strength

 

Daily Strength is a on online support group for patients with CF

Heroes of HopeHeroes of Hope is a project sponsored by Genentech that recognizes and salutes unique individuals with cystic fibrosis who strive to live full, productive lives and serve as role models to others

IME Video LibraryIME Video Library — Reducing Isolation: An Adult Cystic Fibrosis Support Group is a video series about a support group and coping with the disease, sponsored by the University of Wisconsin-Madison

News For Parents

 

News For Parents is a website that offers basic information, expert advice, and the latest news on advancements to treat CF

 

 

Starbright World

 

Starbright World is an online community for teens with cystic fibrosis or other serious medical conditions

 

 

Other Related Resources

American Association of People with DisabilitiesAmerican Association of People with Disabilities

American Disability Association

American Disability Association

disABILITY Information and ResourcesdisABILITY Information and Resources

Disabled Peoples' International

Disabled Peoples’ International

GDF_logo_color_wbg

Genetic Disease Foundation

Liam Foundation

Liam Foundation works to provide children with special needs access to camps with typical kids

National Center for Complementary and Alternative Medicine

National Center for Complementary and Alternative Medicine

NORD

National Organization for Rare Disorders (NORD)

National Rehabilitation Information CenterNational Rehabilitation Information Center (NARIC)

National Transplant Assistance FundNational Transplant Assistance Fund provides financial support to cover uninsured medical procedures related to transplantation

Well Spouse Association LogoWell Spouse Association to support spouses of patients with chronic diseases

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