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CF and self-advocacy
In Lara Govendo’s most recent column, she discusses the importance and passion she has for CF advocacy, particularly self-advocacy. Often, our own advocacy saves our own lives.
How do you advocate for yourself with your CF team? Do you have any tips that you would like to share? -
2 Replies
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As a CF spouse, advocating for my CF partner with their CF care team means being a unified duo, asking for clarification if and when needed, doing research, staying up-to-date on major news and announcements, and ensuring that his medical needs are heard. This takes some preparation – we always come ready to doctor’s visits with our “list of questions” – and while I am usually there with my spouse, I empower him to lead his conversations with them, and I only chime in when needed. As it pertains to hospitalizations, I do my best to ensure that he is receiving the best quality care, and I try stay in the know as much as I can about all ongoings.
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Partnerships in CF are the best way to tackle CF!
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