• Is Chronic Pain a Symptom of CF?

    Posted by bailey-anne-vincent on July 22, 2020 at 6:03 pm

    My column yesterday talked about chronic pain and how I’ve often misidentified with this label. “I don’t have chronic pain,” I think, “I have a variant of Cystic Fibrosis”… They’re different, right? To me, chronic pain almost felt like a problem in of itself, versus a consequence of living in a body that doesn’t always behave.

    But here’s what I wonder: How many of us have chronic pain and where?

    I’m curious how many of us feel pain in the same places.

    Do you wish that “chronic pain” would be treated and cared for as a symptom of CF?

    jenny-livingston replied 3 years, 9 months ago 2 Members · 1 Reply
  • 1 Reply
  • jenny-livingston

    Member
    July 22, 2020 at 9:08 pm

    My sinuses hurt, my stomach hurts, my joints hurt, my head hurts, my back and lungs hurt. I have some degree of pain in at least one area more than days than not. But I’ve never thought of myself as someone with chronic pain either! Interesting…

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