• Parents​ ​and​ ​Caregivers​

  Parents with teens who have CF

  Posted by William on October 23, 2025 at 9:21 am

  I’m an adult with CF, which means that at one point, I was a teenager with CF. Being a teenager now, with CF, is a huge difference from 20 years ago when I was a teenager. Back then, the average life expectancy for CF was 33, and there were no modulators!

  If you’re a parent of a teen with CF, is there any advice or help you’re looking for? If you’re an adult with CF, what would you say to a CF parent who’s raising a teenager?

  William replied 2 days, 5 hours ago 1 Member · 0 Replies

  • living with cf
  • parents and caregivers
  • teen
• 0 Replies

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