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Parents with teens who have CF
I’m an adult with CF, which means that at one point, I was a teenager with CF. Being a teenager now, with CF, is a huge difference from 20 years ago when I was a teenager. Back then, the average life expectancy for CF was 33, and there were no modulators!
If you’re a parent of a teen with CF, is there any advice or help you’re looking for? If you’re an adult with CF, what would you say to a CF parent who’s raising a teenager?
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1 Reply
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While this particular topic isn’t applicable to me or my personal story, it really shines a light on how far research and medicine have come as it pertains to cystic fibrosis. Let’s make CF stand for Cure Found!
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