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  • What do you wish people knew about CF?

    Posted by William on May 27, 2024 at 10:57 am

    Cystic Fibrosis comes in different packages and affects everyone differently. However, there are some shared characteristics/experiences by those of us with CF.

    For those who have CF, what is something you wish others knew or understood about it?

    William replied 2 weeks, 5 days ago 2 Members · 2 Replies
  • 2 Replies
  • gina-michele

    June 25, 2024 at 11:04 am

    While I do not have CF myself, I do wish that more people in my life understood the intricacies and nuances of CF, and all that it requires for both the CF patient and CF caregivers to live the best quality life possible. From medications, to therapies, to sanitizing and sterilizing, to time constraints, to nutrition and a proper diet… the whole circle of it all. More empathy, understanding, and support could go a long way. While it is not necessarily everyone’s responsibility to make themselves fully aware of CF, I do understand that I put a lot of pressure onto my own self as a CF caregiver, and that is something I am trying to work on and find balance within.

    • William

      June 25, 2024 at 1:00 pm

      You definitely don’t need to put pressure on yourself to understand everything about CF. One thing at a time will help!

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