-
What We Will Do When We Have the Cystic Fibrosis Cure
After digging up his old “Cure List,” Brad Dell imagines a joyful future in which all people with CF are cured of the disease. Click here to read more from Brad.Do you ever day dream about finding a cure for CF?
-
0 Replies
-
Even there was a cure for CF. I dont think my life will change drastically.
It will change… i could travel more without the concern of medication time/inhalation/ pulmonary Drainage
At daily routine i wont need PD and Inhalations . And… Meal time.. this is maybe the hardest concern for me with pulmonary drainage too (because i have to rely on someone to come to my house every day ) and the hours i spend because of it..sometimes i even cancel my activities for the day so i could wait for my Physical therapist to come.. thats maybe the biggest burden of all treatments/needs for cf patient for me.
Everything else? My characteristic will not change because i am 28 years like that and thats what i know, every day in my life the 1st thing that i do after i brush my teeth is do inhalationfor 45 minutes…
After all what i have mentioned before i think there will be change at my life.. maybe small one’s at time.. but not drastically.
Regards.
Log in to reply.