patti-rowland
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My daughter has noticed an increase in coughing up blood. Fortunately hers have always been small amounts (teaspoon size) and even if she coughs up a few days in a row, she may then go for up to 3 weeks with no Hemopytsis. Still its scary and sometimes embarrassing for her.
She is on Trikafta and since she was in the clinical trial may have been on it longer than most.
She had a consultation to talk about possibly having embolization but some parts of the consultation sounded discouraging to her.
Was getting this procedure done helpful to you? I am glad to hear it has eased up for you, I am hoping it does for her without this procedure having to be done.
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Taking these people off the transplant list was the right thing to do.
Is the patient not worried about the inflammation to the heart caused by COVID itself?
The same people using the no vaccine because “fetal cells were used” excuse are getting monoclonal antibodies that also used cells derived from fetal tissue year ago. It’s just become their political statement and I am sick of it.
The rest of us are collectively paying the price of the the selfish few. Thankfully our parents generation was not so selfish or we would all be still fighting small pox and polio.
Trying to compare a once in a generation pandemic that has cost 900,000 + American lives to “hazardous hobbies and occupations” is just ludicrous.
Please stop.
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Thank you Lisa for posting the link to the article. I enjoyed it, especially since it was written by actual Doctors!
I hope the worst of this pandemic is behind us. Not everyone has the luxury of “isolating themselves during flu season” or taking off work from Dec – March.
My adult daughter is the one with CF in my family. I was in the Moderna clinical trial for the vaccine as I wanted to feel like I was part of a solution. I also selfishly hoped for an early vaccine to avoid bringing the virus home to my daughter. I was lucky to score the actual vaccine as opposed to placebo.
It sounds like you are doing well with your transplant, I wish you all the best! 🙂