My Personal Paradox Sets the Bar Higher and Higher
I have a productivity complex: I feel like if I’m not being productive, I’m wasting my time. And yet, whenever I accomplish something, I don’t bask in the enjoyment of accomplishing that…
Mutations & Conversations
— Tré LaRosa
Tré is a 27-year-old living with cystic fibrosis in Pensacola, Florida who works as a research lead for Bionews Insights. He is an extremely passionate advocate for disabled rights and people living with chronic disease, especially cystic fibrosis. His sister, Alyssa, died at 29 due to chronic rejection of her bilateral lung transplant, pushing him further into the fight for a better world for all. “Mutations & Conversations” discusses the science and sociology that binds us all. He also loves his golden retriever, Duncan, very much.
Featured Post
Searching for Motivation as I Struggle With Depression
When I took Advanced Placement psychology in high school, a few subjects stuck out to me as being intuitive. I was weirded out by this because the majority of school lessons were not intuitive.
Read more
How Do We ‘Speak CF’ in a Way that Connects Us?
We all play different roles in our lives: We are friends, children, siblings, parents, cousins, employees, and more. In each of these roles, we assume the jargon of that role when we…
I Work Next to CF Experts, and I Know They Really Care
For nearly three years, I’ve worked alongside brilliant CF doctors, scientists, and PhDs at a great research hospital. Before that, during college, I worked closely with CF scientists and PhDs at the…
How We Capitalize on ‘Five Feet Apart’
The CF community’s strength is in its powerful, far-spread voice. For people with a chronic disease, and doubly so when that chronic disease is rare like CF, it is critical for the…
Let’s Talk About Death and Grief
I consider myself a conversation-starter. I like discussing serious topics and sharing my genuine feelings and thoughts with others. I enjoy talking about sports, engaging in light banter, and dissecting the plots…
I See Poetry in the Scientific Process
I walk two paths: One is that of logic in my career as a scientist. In this field, it’s critical to remove emotion from the picture as much as possible. I work…
The Power of Escapism
One of the first fiction books I read in adulthood was a book called “The Amazing Adventures of Kavalier & Clay,” by Michael Chabon. The story of how I came across…
CF Science Is Unexpectedly Beautiful
During my sophomore year of college, the background on my computer screen was a cystic fibrosis transmembrane conductance regulator (CFTR) protein, specifically a visualization of its quaternary structure. It looked something like…
CF Forces Me to Have a Different Long-term Outlook
In high school, I aspired to be a pulmonologist for obvious reasons: I wanted to aid the CF community by directly helping patients. It seemed logical. I dreamed of becoming a pulmonologist…
My Family Had 2 Children with CF
It was unlikely that my parents would bear two children with CF. When both parents carry a CF mutation but don’t have the disease itself, there is a 1 in 4 chance…
My Thoughts on Exercise and CF
It’s hard to understate the benefits of exercise for healthy people, let alone people with CF. According to the Mayo Clinic, some of these benefits include: It controls weight. It combats health…
The Burden of Care in the Life of a CF Patient
A couple of months ago, I did back-of-the-envelope calculations on basic CF stats. Here’s what I asked: In a year, how much time do I spend doing treatments? How many pills do…
Your CF Community
Visit the Cystic Fibrosis News Today forums to connect with others in the CF community.
