CF Foundation Launches Fresh Website Design and Content

Patrícia Silva, PhD avatar

by Patrícia Silva, PhD |

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Cystic Fibrosis Foundation

The Cystic Fibrosis Foundation, the country’s leading not-for-profit organization dedicated to finding better ways to control and cure CF, has just launched a completely redesigned website at The organization noted that the website redesign is a result of the CFF’s unwavering determination of its mission, which is to provide patients and their significant others the medical and informational support they need to still live a fruitful, long life despite the debilitating disease.

Along with a fresh look, the CFF website now offers expanded content for patients and their families, such as insurance must-knows, ongoing research, currently available treatments and tips on managing the disease at school and in the workplace. It has also incorporated social media and a community blog, giving visitors a venue to reach out and share their experiences and opinions. The blog will be open to everyone in the CF community, including medical professionals, volunteers, and researchers.

“The needs of people with CF are the guiding force behind the new,” said Robert J. Beall, Ph.D., president and CEO of the CF Foundation. “We know that while we have made great progress in understanding and treating CF, we must remain focused on supporting those in the CF community with the resources they need to stay healthy and lead fulfilling lives.”

The website also features CFF’s proprietary research and drug development models, which has already made great advancements, including a new FDA-approved treatment, Orkambi (ivacaftor/lumacaftor).

“Today, half of all people living with CF are over the age of 18 and the new is designed to help them navigate the real issues they face every day,” said Amy DeMaria, senior vice president of communications at the CF Foundation. “We look forward to further engaging and supporting the CF community at every stage of life.”

In an earlier report on the Cystic Fibrosis Foundation, Children’s Healthcare of Atlanta, Emory University, and Georgia Tech were recently awarded a grant by The Cystic Fibrosis Foundation to expand the Atlanta CF Research and Development Program ([email protected] RDP Program).

The four-year grant worth $1.8 million will enable the collaborating institutions to expand their current cystic fibrosis research projects and translate the studies’ results to therapies and treatments for patients.


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