The Existential Crisis of Going From Dying to Living
Imagine living your whole life knowing you have an early expiration date. Then you wake up one morning, and that’s no longer the case. Sounds great, right? Of course it is, but it’s so…
Path Unknown — Wendy Caroline
Wendy is a vivacious young adult who’s passionate about living life despite battling cystic fibrosis. She loves going on adventures with her husband, Andy, and their dogs, Finn and Felix. Wendy is very active in spreading awareness about CF through her blog and social media — “The Living, Breathing Wendy.” She also helps through the CF Foundation where she can, both nationally and locally.
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After Trikafta, I’m Struggling to Redefine My Online Persona
Social media is a strange and fickle web of predetermined, or accidental, personas. I used to be very active on social media, with the intent of spreading awareness of cystic fibrosis. It was easy…
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Which Is More Important: Physical or Mental Health?
When I was in high school, an informational book about cystic fibrosis made its way to me. As I read through it, I found a section on mental health. It stated something along the…
The ‘5-year Plan’ Is Not for the Chronically Ill
In my last column, I addressed feelings I had about being unable to perform at the same professional caliber as my peers. One of the ways I have mentally adapted is realizing this:…
An Open Letter to the Chronically Ill Professional
Dear Chronically Ill Professional, You are enough. It’s easy to look around and compare yourself to your peers. Maybe you didn’t get that promotion because you were sitting in doctors’ appointments instead of working…
We Need to Recognize Diversity in the CF Community
A lot is happening in the world right now. We are in the midst of a pandemic and a civic revolution. I believe it is important to use my voice to start a conversation…
Why My Service Dog Is Staying Home
COVID-19 has uprooted my life in many ways. Some are obvious, some are not. Like many people with disabilities, I have been in isolation since the outbreak began. Shortly after, an interesting…
The US Healthcare System Desperately Needs Change
I am drained. My current situation astonishes me. The United States healthcare system must change. Over the past month, I’ve dealt with some severe and unusual health insurance issues. Before I continue, I want…
How Isolation Has Brought Calm to My Life
Self-isolation has caused an unexpected sort of peace to my daily life. Before you call me crazy, hear me out. I am usually constantly busy. I work several jobs, partake in countless hobbies, and…
Trikafta Therapy Prompted the Most Unexpected Emotions
The excitement and flurry around the new combination therapy Trikafta (elexacaftor/tezacaftor/ivacaftor) brought a lot of hope to the CF community. This is a good thing. However, many complex emotions are not being addressed.
My Perspective on COVID-19 as a CF Patient and a Restaurant Manager
My head has been spinning with how rapidly the effects from COVID-19 have engulfed the world. It is a great reminder from Mother Nature that humans are not invincible, despite what it may…
Trust the Process: Your Hard Work Will Be Worth It in the End
I did not trust the process. I was impatient. A common theme with technological advancements is the expectation of instantaneous results. How many times have you heard someone tell you to “Just…
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