The FDA approval of the CFTR modulator, Kayldeco, in 2012 changed the paradigm of CF healthcare by providing a therapy to address the underlying cause of the disease. The previous paradigm in CF…
Just Breathe: Adults living with Cystic Fibrosis is a newly released book that captures the human experience of Cystic Fibrosis through a series of simple, yet complex portraits of adults living…
Dorothy Andersen, M.D., was the first to write a full report describing cystic fibrosis in 1938, and since her initial writings, gradual improvements have been added to improve CF health management for patients. Technological…
In a previous article I referenced the first portion of the Nature Review, “cystic fibrosis genetics: from molecular understanding to clinical application,” written by Dr. Garry Cutting, to…
Cystic fibrosis was ushered into the spotlight during President Barack Obama’s 2015 State of the Union Address as he highlighted the advances in CF therapy, which have served as a model for the President’s…
Although I am a student in a biomedical science program I have only begun in the past two years to educate myself in issues relating to Cystic Fibrosis. When I was growing up…
In November, the Cystic Fibrosis Foundation sold their royalty rights for CF related drugs developed by Vertex Pharmaceuticals for $3.3 billion. The number is staggering and it…
My little sister, Jennifer, was a beautiful woman who, like myself, fought Cystic Fibrosis throughout her life and on Saturday, February 7, she passed away at twenty-three after her body rejected the set of…
In this week’s editorial column, Cystic Fibrosis News Today’s Stephen Shannon sounds off on the recent news of the Cystic Fibrosis Foundation‘s recent $3.3 billion royalty sale involving Vertex’s Kalydeco, the ensuing controversy over…
In his first weekly column for Cystic Fibrosis News Today, PhD student and CF patient Stephen Shannon talks candidly about what the ongoing search for a cure for Cystic Fibrosis means to him, and…
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