UPDATE 06/17/2016 One of the Our Cystic Fibrosis Journey youtubers reached out to us letting us know the following: “Sorry all, due to differences in the group the channel is no longer active. The original group creators have also decided to delete all…

https://www.youtube.com/watch?v=FrfWMg4_Ol0 Last week we introduced you the Our Cystic Fibrosis Journey channel where some of your favorite youtubers will now share their cystic fibrosis stories with you. Last week’s theme was “Port Vs Picc Line”. Here are Larry Brian’s thoughts on the subject. To learn more about cysticf, click here:…

UPDATE 06/17/2016 One of the Our Cystic Fibrosis Journey youtubers reached out to us letting us know the following: “Sorry all, due to differences in the group the channel is no longer active. The original group creators have also decided to delete all…

“The Lame Lung Tag video is where patients with Cystic Fibrosis answer a set of questions that reflect how they manage their care and live with CF. At the end of the video each patient “tags” another patient to do a video where they…

Watch youtuber Larry Brian talking about his experience with Orkambi. Learn all about Orkambi (lumacaftor/ivacaftor) here: https://bit.ly/1jCoQUT If you wish to learn more about Cystic Fibrosis enter here: https://bit.ly/1QltnFs Note: Cystic Fibrosis News Today is strictly a news and information…

While the majority of patients diagnosed with cystic fibrosis (CF) at birth experience the symptoms of the disease during their childhood, Larry Brian is an uncommon case. The 25-year old patient never really understood the extent of suffering from the chronic and debilitating disease until he went to college.