I have always loved Halloween, but celebrating it with a chronic illness like cystic fibrosis has always meant having to be creative. Being chronically ill meant having to spend a few Halloweens in the hospital or at home, but my mom always made the most of it so that I’d…

Are you living or surviving? Most cystic fibrosis patients have dabbled with this question. To what extent does your health guide your life, rather than love or ambition? I knew the answer back in 2018, but after my bilateral lung transplant in June 2019, things grew complicated. Letting go…

Two of my friends are dead. And I’m scared. Recently, I lost two friends on the same day. One was in love with a dear friend of mine — he has a milder form of cystic fibrosis, and they successfully loved and lived for years. The other I texted nearly…

I’m no stranger to home IV antibiotics. Actually, if I am being completely honest, I think we have gotten a little too friendly over the past decade or so. I prefer to do home IVs because I am one of those patients who goes a little nuts after being trapped…

Peter and Mary Frey are a young couple just like any other and starting a family together. However, there is one thing that makes their family different from the average American household. Mary suffers from cystic fibrosis (CF). Read more about their amazing story here.  In this The Frey Life video, watch…

In this The Frey Life video, watch the step by step process for accessing and de-accessing a port. “We take time to show you the proper way to stay sterile, and little tips and tricks we have learned during the ten years that I have been independent with my port care.”…