https://www.youtube.com/watch?v=BhFpFiZumS0 Cystic fibrosis is a genetic disorder that affects the lungs, pancreas, liver, and intestine. It is one of the most common lung diseases in children, affecting approximately one in every 3,000 newborns. Read about 17 important facts and statistics about cystic fibrosis. In this easy to understand…
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Meet Gifted Organs, a pop band made up of transplant recipients and support musicians whose music celebrates the “Gift of Life” and increases awareness about the organ donation process. Learn more about cystic fibrosis and lung transplants here. “‘Gifted Organs’ hope to raise awareness,…
In this Bidchat video, Holland Roden, Max Carver, Charlie Carver and JR Bourne challenge you to #Howl4ACure and help raise money for the Cystic Fibrosis Foundation. Learn more about what came out of the CF Foundation research conference that gathers genetic…
https://www.youtube.com/watch?v=2kU5OYriusU When holidays and sunny days abound, it’s time to enjoy the great outdoors. Learn more about how people with cystic fibrosis use different forms of exercise to keep fit and healthy. In this CysticFibrosis Fighter video, a cheerful CF patient from the United…
In this Gifted Life video, several transplant recipients answer the question: “If you could talk to your donor, what would you say?” Hear emotion filled answers that come with great gratitude for donors who gave them the gift of life. Learn more about cystic fibrosis and lung…
In this Pactster video, check out Katie Malik who is a cystic fibrosis (CF) patient and yoga teacher. Malik created a series of yoga videos specifically designed to benefit others like herself who live with the chronic lung disease. Learn from…
In this Synergy Vision video, meet Caz a cystic fibrosis patient diagnosed in 1986 at just 18 months old. Here are 8 tips to manage your cystic fibrosis. At the time of the diagnosis, her parents were told that their daughter would…
In this video, recap cystic fibrosis patient Beau Rich‘s amazing 2014 hiking, driving, skateboarding and swimming journey across the United States while maintaining CF care with new mobile medical devices. As seen in the video, one of the devices is an Afflovest which recently received the CE…
Here are 8 tips to manage your cystic fibrosis. In this Cystic Fibrosis Trust video, watch Sammie Read and Dr. Keith Brownlee talk about how technology and big data can improve and transform the lives of cystic fibrosis patients.
1. Write a to-do list for the day and organize your schedule for the week ahead. Here are 8 other tips to manage your cystic fibrosis. 2. Find a way to manage your tasks. Did you know there’s an app that…
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