Here are six organizations doing remarkable work either in research or alongside patients and their families which you can help directly or bring awareness to. Meet the Take a Breather Foundation. Their goal is “to allow children living with cystic fibrosis, along with their families, to ‘take a breather’…

In this video by Bradley Bjornstad, watch a beautiful documentary he made for his wife before she lost her battle with cystic fibrosis. Here are 8 other tips to manage your cystic fibrosis. “This piece is by far the…

Do you know that there is an app that can help you manage cystic fibrosis, including all aspects of your health and care plan? Learn more about the CFBuzz app here. In this Gifted Life video, watch Lauren Rowe’s morning routine as…

To improve the quality of life and increase lifespan, early detection is paramount.  Developing a comprehensive regime of treatment is necessary, along with close monitoring over time.  It is best for patients to be treated at CF clinics, which are available in a number of communities. There are a…

In this welcometojoshland video, watch the “The Respiratory Therapy Song” performed by Josh Mogren and Basses Wild Men’s A Cappella from the University of Minnesota. Learn more about how researchers are looking into whether Tai Chi improves breathing for people with cystic…

Patients with cystic fibrosis use different forms of exercise to keep fit and healthy. Cystic fibrosis patient, Katie Murphy, told BBC News, how climbing has helped her manage her cystic fibrosis and improve her overall health. “Now I haven’t been in hospital for two years.”…

In addition to the physical symptoms that cystic fibrosis patients have to deal with, they and their family, friends and caregivers also face an emotional burden associated with the disease. As a progressive disease, cystic fibrosis can involve a stressful routine of symptoms and treatments. The CF community may face…

Who doesn’t remember Alex Stobbs, the British musical prodigy with cystic fibrosis who was the star of the Channel 4 “Cutting Edge” 2008 documentary “A Boy Called Alex”? Some patients suffering from CF are celebrities or became celebrities due to their fight against the disease. Read more about…

https://www.youtube.com/watch?v=1mbDNM1aJQY Some patients with cystic fibrosis use different forms of exercise to keep fit and healthy. Then there is Nathan Charles, who excels in rugby despite having cystic fibrosis. In this video from nutrigrainau, meet cystic fibrosos patient and…

Here’s a list of some of the many online resources that might be able to help you dealing with cystic fibrosis. Keep in mind the importance of finding those that best suit you. 1. CF2Chat   CF2Chat is a forum and chat website for people with cystic fibrosis, featuring…