Some cystic fibrosis symptoms can make it difficult for patients to exercise, but studies have determined that regular physical activity can have a significant impact on improving a patient’s quality of life. Read about an innovative research center that provides tailored physical activity and exercise regimens for young…
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Here’s a list of some of the many online resources that might be able to help you dealing with cystic fibrosis. Keep in mind the importance of finding those that best suit you. 1. CF2Chat CF2Chat is a forum and chat website for people with cystic fibrosis, featuring…
1. Foreverland (2011) “A young man with cystic fibrosis, along with the sister of a fallen friend, goes in search of a legendary healing shrine in Mexico.” in IMDB Here’s 16 cystic fibrosis tattoos that will inspire you. 2. Sick: The Life…
In this amazing video, listen to Annie Elainey talk about invisible illnesses and how misleading it can all be. “You are here to find out what are those clues you should be looking for when trying to figure out if someone is disabled…
1. The Protagonist: Jerry Cahill Jerry Cahill is a pole-vaulter in his fifties who continues to fight respiratory degeneration, depression, and a potentially fatal double-lung transplant. Some of these themes are addressed in the documentary and the viewer is able to follow Jerry throughout these transitions. 2. Directed by Artem…
In this Make-A-Wish America video, learn how the two-time Grammy-winning a cappella group, Pentatonix, made Allison’s wish come true. The dream of this cystic fibrosis patient was to meet and sing with Pentatonix. Watch the video and discover the special surprise the band had…
In this Boomer Esiason Foundation podcast, listen to Mary Cahill – Jerry Cahill‘s mother – talk about what it was like raising a cystic fibrosis child among her other “normal” children. And also, learn more about the decision that led “Jerry to live an…
UPDATE 06/17/2016 One of the Our Cystic Fibrosis Journey youtubers reached out to us letting us know the following: “Sorry all, due to differences in the group the channel is no longer active. The original group creators have also decided to delete all…
Cystic fibrosis (CF) patient Anne Barkley is 17-years-old and recently created a project called Cystic Fibrosis Tips N’ Tricks. The project started by the teenage activist is meant to help other people who are also dealing with the chronic and genetic disease that causes damages in the lungs and…
UPDATE 06/17/2016 One of the Our Cystic Fibrosis Journey youtubers reached out to us letting us know the following: “Sorry all, due to differences in the group the channel is no longer active. The original group creators have also decided to delete all…
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