UPDATE 06/17/2016 One of the Our Cystic Fibrosis Journey youtubers reached out to us letting us know the following: “Sorry all, due to differences in the group the channel is no longer active. The original group creators have also decided to delete all…
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Exercise can help patients who suffer from cystic fibrosis (CF) deal with the disease and its symptoms. While CF patients should be advised by their physicians on the most appropriate exercise to do and the appropriated intensity, yoga may be a helpful option. In this video, the couple Peter and…
The professional racer Carl Edwards and the Nº 19 Stanley race team spent a Sunday racing to fundraise and help sick children, including those with cystic fibrosis (CF). The team participated on May 15, at the Dover International Speedway and if they win, the company Stanley Black & Decker said it would donate $1…
In this Gifted Life video, learn some hospital hacks that might come in handy for a possible next admission (hopefully not ever). “To everyone who is currently in a hospital bed, I hope you are all out of there soon!!!!” To learn more about cystic fibrosis, click here:…
The president and CEO of the Cystic Fibrosis Foundation (CFF), Dr. Preston W. Campbell, III, MD, was recently invited to participate in a video series to talk about the work of the foundation and raise awareness for cystic fibrosis (CF). The interview is part of Better Business Bureau’s…
In this video by the Boomer Esiason Foundation, we hear from 24-year-old Gunnar Esiason. “He discusses how important it is for people with cystic fibrosis to remain compliant – with their medications, treatments, nutrition, and exercise.” To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs…
There are numerous organizations and foundations focused on fighting cystic fibrosis (CF), but Emily’s Entourage stands out for the rapid rise from a local group to being recognized by the White House in just a few years. The stories of the organization Emily’s Entourage and of Emily Kramer-Golinkoff go…
Eva Markvoort was a young woman who blogged about her fight with cystic fibrosis. At the age of 25, Eva sadly passed away. Watch the video above to remember some of her words of strength. Eva also left behind a documentary – 65_RedRoses. To watch the trailer and learn more…
Holly, 22, suffers from cystic fibrosis. Her life expectancy is only to 25 to 30-years-old without a double lung transplant. Will Holly get her call and a “second chance at life”? This short documentary film by Emily Mitchell and Jess Pardoe follows Holly Van Geffen and her battle with cystic fibrosis while…
1. Most Female CF Patients Have No Problems Conceiving According to the Cystic Fibrosis Foundation, cystic fibrosis (CF) affects the reproductive system, but most women have no difficulties in getting pregnant. Female CF patients have a thicker cervical mucus caused by the defective functioning of the cystic fibrosis…
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