https://www.tumblr.com/cf-vs-everest/144406773599/thought-i-would-skip-straight-to-pic-number-6-i Remember Nick Talbot, the amazing 40-year-old man living with cystic fibrosis who was attempting to climb Mount Everest? Well, he just became the first person with CF to ever climb the tallest mountain in the world. See his first words about it above. To learn more about…
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https://www.youtube.com/watch?v=FrfWMg4_Ol0 Last week we introduced you the Our Cystic Fibrosis Journey channel where some of your favorite youtubers will now share their cystic fibrosis stories with you. Last week’s theme was “Port Vs Picc Line”. Here are Larry Brian’s thoughts on the subject. To learn more about cysticf, click here:…
In this Cystic Fibrosis Trust video, find out all about the latest CF news. “Dr. Michael Gray is getting excited about a protein, there have been new developments in pseudomonas research, a pilot study is looking into the benefits of tai chi and a new strategic research centre is…
https://www.youtube.com/watch?v=EClRa9R7vxg Last week we introduced you to the Our Cystic Fibrosis Journey channel where some of your favorite youtubers will now share their cystic fibrosis stories with you. The first week’s theme was “My story.” Here is Miranda Porche’s. To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs…
In this Cystic Fibrosis Foundation video, remember the amazing efforts of advocates within the CF community from the last 10 years and learn how that helped pass three crucial pieces of legislation into law in four years. To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs…
Two weeks ago, we introduced you to the ‘Breathe With Me’ #Strawfie challenge for cystic fibrosis awareness, where people post selfies of themselves covering their noses and breathing through a straw. The idea behind this internet trend is to bring awareness as to how a cystic fibrosis patient…
A diagnosis of cystic fibrosis has greatly changed in the past three decades. Children who are born with the disease today have a completely different prognosis from those born 30 years ago. While the diagnosis was possible through a sweat test, there were no methods of treatment and the…
UPDATE 06/17/2016 One of the Our Cystic Fibrosis Journey youtubers reached out to us letting us know the following: “Sorry all, due to differences in the group the channel is no longer active. The original group creators have also decided to delete all…
In this The Digital Shore video, learn more about Sophie’s story and join then and the Cystic Fibrosis Foundation to help search for a cure. To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news here: https://bit.ly/1jNDqsz…
In this The Frey Life video, watch the step by step process for accessing and de-accessing a port. “We take time to show you the proper way to stay sterile, and little tips and tricks we have learned during the ten years that I have been independent with my port care.”…
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