Remember the “I’ve Got Cystic Fibrosis” song? In this Cystic Fibrosis Trust video, watch its author and singer Charles Michael Duke, who also doubles as an actor and vlogging extraordinaire, talking about winning one of the Helen Barrett Bright Ideas awards. “Thank you so much to the Cystic Fibrosis Trust…
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Cystic fibrosis (CF) is among the most common and severe genetic diseases in the United States, with about 1,000 new cases every year. The disease is caused by a defect in the cystic fibrosis transmembrane conductance regulator (CFTR) gene and it affects the secretory glands, which are responsible for the production…
In this Gifted Life video, watch Lauren answer eight questions regularly asked about her transplant journey. Stay updated on all the latest transplant news here. Cystic Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice,…
“My ultimate dream is to become a register dietitian/nutritionist and I would love to work with other cystic fibrosis patients to help them improve their quality of life through diet.” To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all…
“The fear of dying. People find it a really hard topic to talk about because you don’t want to think about that. It is quite a scary thing.” To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest…
Cystic fibrosis is a life-threatening, genetic disease that affects patients’ ability to breathe and causes persistent lung infections. There is currently no cure for cystic fibrosis, but there are treatments designed to help patients maintain their health and have longer, more fulfilling lives. There are cystic fibrosis medications approved for patients with the disease,…
In this Cystic Fibrosis Foundation video, learn more about new developments in drugs to restore airway surface liquid. “Airway surface liquid is one of the fundamental problems in cystic fibrosis.” To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the…
1 – “I’ve Got Cystic Fibrosis” – A Charles Michael Duke Song “Wrote this song last year to mark CF Week, and help raise awareness. So for this year, I decided to write some new lyrics and make a proper video for it! ” Watch video here: https://bit.ly/1YaNvxL…
This Cystic Fibrosis Foundation video provides “recommendations for cleaning and disinfecting your Altera or eFlow nebulizer.” To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news here: https://bit.ly/1jNDqsz…
In this welcometojoshland video, watch the “The Respiratory Therapy Song performed by Josh Mogren and Basses Wild Men’s A Cappella from the University of Minnesota, this original song was created for the CF Community as a part of the “Moganko For Cystic Fibrosis Awareness Project”. It’s a grass roots campaign…
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