To improve the quality of life and increase life span, early detection is paramount. Developing a comprehensive regime of treatment is necessary, along with close monitoring over time. It is best for patients to be treated at CF clinics, which are available in a number of communities. There are…
Image
In this Gunnar Esiason podcast, meet Julia Rae, the 24-year-old college senior who holds the title of Miss Philadelphia 2015. She also has cystic fibrosis. To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news here:…
In this video by the Cystic Fibrosis Trust, meet Emily, 24, who has been on the transplant list since November 2012, watch as she shares her story. To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news…
In this video by Nemours, learn more about cystic fibrosis newborn screening. “This video was designed to help put parents’ minds at ease about newborn screening for cystic fibrosis. It’s good to know that most babies with an abnormal screening test do not have CF. However, it is still…
“Wrote this song last year to mark CF Week, and help raise awareness. So for this year, I decided to write some new lyrics and make a proper video for it! ” To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated…
In this Cystic Fibrosis Trust video, “NICE decides against recommending Orkambi on the NHS in England, Ireland does its first EVLP transplant, there’s a digital debate to further democracy and The Libertines raised money for raffling off their tea.” To learn more about cystic fibrosis, click here:…
“Orkambi has meant so much to so many people living with CF, like Clara Mann, 14, the youngest UK person who was on the three-year trial.” To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news…
1 – 10 Cystic Fibrosis Symptoms to Look Out for Learn more about the CF symptoms to look out for in newborns and infants. Read full article: https://bit.ly/1UWH7L1 2 – Raptor’s Cystic Fibrosis Treatment, Inhaled Levofloxacin, Granted FDA Infectious Disease Designation FDA) The U.S. Food and…
https://www.youtube.com/watch?v=gQhs6F_8Ny0 In this Gifted Life video, watch a cancer patient and CF patient play “Two Truths One Lie Medical Edition”. “This week I get to find out Nikhils deep secrets and lying ability in ‘Two Truths One Lie’ while sharing some of my own stories. Hope you guys enjoy this little…
In this Boomer Esiason Foundation video, learn how Jerry Cahill’s life is after a double lung transplant. To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news here: https://bit.ly/1jNDqsz…
Your CF Community
Visit the Cystic Fibrosis News Today forums to connect with others in the CF community.