Watch the Frey’s explaining how is day-to-day real life with cystic fibrosis for them. To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news here: https://bit.ly/1jNDqsz…
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Last Week’s Hot Topic on Cystic Fibrosis
Last week’s hot topic on Cystic Fibrosis titled Phase 3 Trial of Inhaled Antibiotic to Treat CF-related Lung Infections Supported by $20M in New Financing was written by Daniela Semedo. The article is focused on Savara Pharmaceuticals recently announcing that it has closed a $20 million Series C…
Imaging in Cystic Fibrosis: What to Expect
https://youtu.be/I-YKijMYH9s This video is the result of an assignment given to first year UCD Radiography & Medicine students for a module on Healthcare Imaging & Information Systems. The students created a resource to inform patients about the experience they could expect. Learn more about CF here: https://bit.ly/1nOGoQ2…
Cystic Fibrosis Advocacy by CF Foundation
In this video by the Cystic Fibrosis Foundation, hear how Melissa Shiffman, an adult with CF, shares her personal story when she advocates for the disease. To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news here:…
7-Time World Champion Exhibition Dancer Fights CF
Natalie Woolf, 7-time world champion exhibition dancer and recipient of the Carl Alan Award, didn’t want to disclose her fight with cystic fibrosis (CF) for fear of not being judged on merit, but by pity. Now, changed by CF, she shares her journey with the world and invites each of…
Empowering Self Care From a Young Age
In this The CFurther “Empowering Self Care From a Young Age” webcast watch some “practical advice to caregivers on finding the right balance between shifting the responsibilities of managing cystic fibrosis (CF) treatments to their children, while still providing needed support. The expert panel includes Kat Quinn, mother to…
“Over the course of five years, the Up for Air documentary team followed Jerry Cahill, a CFer in his fifties, as he lived his everyday life; an everyday life unique compared to many. Throughout this documented journey, Jerry demonstrates how a positive attitude, relentless self-discipline, and physical perseverance allow…
Traveling with Cystic Fibrosis with Live Q&As
In this initiative by Cystic Fibrosis Canada, tune in on Thursday, March 10 at 2pm EST for a live question and answer session about traveling with cystic fibrosis (CF). “Kate Gent, nurse at St. Michael’s Hospital Adult CF Clinic and Louise Taylor, nurse at Sick Kids CF Clinic will be…
Corporate Great Strides
In this Cystic Fibrosis Foundation video, corporate leaders answer the question: “Why Great Strides?” To learn more about cystic fibrosis, click here: https://bit.ly/1QltnFs Stay updated on all the latest CF news here: https://bit.ly/1jNDqsz…
CF Wind Sprint: Gearing Up to Bike
In this Boomer Esiason Foundation video, Jerry Cahill, cystic fibrosis (CF) patient for almost 50 years, gives some advice on how to prepare to leave your stationary bike at home and go biking outdoors. Learn more and keep updated about CF here: https://bit.ly/1nOGoQ2…
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