In this roundtable podcast from the Cystic Fibrosis Trust, host Oli Lewington talks to author Tim Wotton, music therapist Jo Acharya and Emma Lake from the Cystic Fibrosis Trust about their involvement in Alice Peterson’s fictional novel “A Song for Tomorrow.” MORE: …

https://www.facebook.com/CharlesMichaelDuke/photos/pb.693648407393934.-2207520000.1508334003./1492347040857396/?type=3&theater Charles Michael Duke is a singer, actor and TV host from Bournemouth in the U.K. He’s also a YouTube star who is using his fame to raise awareness of cystic fibrosis (CF) and organ donation.  MORE: The danger of cross infections for those…

Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to remember, symptoms to keep track of, and lots of information to absorb. Thankfully, living in a digital age means that there are numerous mobile apps that can help you manage…

After several decades of research into cystic fibrosis, there’s a wealth of weird information out there about the disease, its common bacteria, and medications. How many of these did you know already? 1. It is hypothesized that cystic fibrosis genetics have resistance to infectious diseases such as tuberculosis,…

There is much talk in medical circles about the use of medical marijuana (or cannabis) for a variety of chronic illnesses, but could it also benefit those living with chronic lung disease? MORE: What a doctor wants people to know about chronic illnesses Medical marijuana is currently legal in 23…

There are many ways to raise awareness of a chronic illness — but one of the most effective methods is through art. Company 360 is a performing arts company that’s been able to take their skill and translate it into moving think pieces that encourage discussion…

Cystic fibrosis researcher Joshua Stokell, Ph.D., left behind the most intensive sampling of a single CF patient — studies of his own lungs’ bacteria — when he passed away in June 2015. His gaming team, Dads of Destiny (DoD), is determined to continue Stokell’s legacy of research by donating…

This video from the Cystic Fibrosis Trust in the U.K. discusses the dangers of cross-infection for cystic fibrosis patients. Cross infection is when two people living with cystic fibrosis (CF) meet and pass infections from one to another. MORE: Eight tips for staying hydrated with…

Exercising and maintaining good health is encouraged for everyone, but when it comes to cystic fibrosis (CF) patients, regular exercise has been shown to have an even bigger impact. It’s believed that exercise can help reduce lung-function decline and help keep stress levels low and improve sleep. These videos from the…

Pulmonary rehabilitation (PR) should be part of the treatment plan for any chronic lung disease, including cystic fibrosis. It’s a combination of exercise, breathing techniques, diet and education that aims to help give patients a better quality of life and be able to have more control of their symptoms. We’ve compiled…