A new study identified a genetic element that codifies a novel iron acquisition system that plays a previously undiscovered role in P. aeruginosa airway infection during cystic fibrosis (CF). The discovery could aid in improving prevention and treatment of P. aeruginosa in CF patients. Learn more…
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Cystic Fibrosis Patient Testimony on Orkambi
https://www.youtube.com/watch?v=3ARdU_FVAgA Orkambi is a combination therapy for treatment of cystic fibrosis. The FDA approval for the therapy was announced on July 2nd, 2015. This is Kate Marshall’s Orkambi testimony before the Open Public Hearing OPH portion of the May 12, 2015 Pulmonary-Allergy Drugs Advisory Committee…
#WorldStatisticsDay – Cystic Fibrosis Numbers
According to the Cystic Fibrosis Foundation: About 70,000 people are living with cystic fibrosis worldwide; In the United States alone: About 30,000 people are living with cystic fibrosis; Approximately 1,000 new cases of CF are diagnosed each year; More than 75 percent of people with CF are diagnosed…
Last Week’s Top-3 Most Read Posts On Cystic Fibrosis
Orkambi (lumacaftor/ivacaftor) For Cystic Fibrosis Ex-vivo Lung Perfusion Technology Opens New Possibilities In One Of The Most Problematic Areas Of Lung Transplant Surgery Galapagos Announces Advancement of GLPG2665 for Triple Combination Treatment for Cystic Fibrosis Patients …
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Cystic Fibrosis Symptoms
Learn more about Cystic Fibrosis Symptoms here: https://bit.ly/1PcTgtJ…
#MakeMondayBetterIn3Words
Learn more about cystic fibrosis here: https://bit.ly/1jNDqsz…
Celine Dion Is Raising Awareness For Cystic Fibrosis
Usually celebrities use their power to promote public awareness and raise help for causes close to their hearts. Read more about #CF here: https://bit.ly/1QltnFs Read more about Celine Dion’s commitment to the #CF cause here: https://bit.ly/1QW1e88…
Raise awareness for Cystic Fibrosis
Keep up with the most recent news on Cystic Fibrosis here: https://bit.ly/1jNDqsz…
#NACFC – Broadcast Schedule Information
Follow the North American Cystic Fibrosis Conference livestream here: https://bit.ly/1L1YIM6 Broadcast Schedule Information Thursday – 10/08/2015 10:00AM – 11:45AM MST >>W06: CLIN: Epidemiology of CF >>W08: NRS: Implementing Infection Prevention and Control Guidelines: Successes & Challenges >>W09: SW/PSYCH: Implementation of Mental Health Screening: Strategies & Successes Thursday –…
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Recent Posts
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- Advocacy has a way of bringing out the best in people