6 Tips for Caring for a Family Member with Cystic Fibrosis


4. Lifestyle Alterations in a Family Affected by CF

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Cystic fibrosis is a disease which affects not only the patient but the entire family, who will need to adapt to a new everyday reality. Continually seeking knowledge and news about the disease can help patients and families keep updated and ready for any event. Even if one parent is more responsible for taking care of the child with cystic fibrosis, it is important that the entire family is aware of the features of the disease and don’t neglect routine care like check-ups and immunizations.

People with cystic fibrosis are particularly likely to develop infections, and even just a cold can be problematic since viruses can have a major impact on health. Therefore, it is important to avoid exposing the whole family to illness. Similarly, smoking should be avoided. Smoking has severe consequences, even second-hand smoke and in the case of CF patients, who work daily to slow lung damage, it is even worse.

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One comment

  1. Deb Haupert says:

    ACOG recommends pre conceptual testing for all women. Committee Opinion #486.
    Family history need not be present to have a child with CF or a child who is a CF carrier.
    Newborn screening does not identify all carriers.

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