14 Cystic Fibrosis Online Resources that Might Help You
Here’s a list of some of the many online resources that might be able to help you dealing with cystic fibrosis. Keep in mind the importance of finding those that best suit you.
CF2Chat is a forum and chat website for people with cystic fibrosis, featuring news, therapy and health tips, a photo gallery, and a recipe page.
2. CF Infants and Toddlers
CF Infants and Toddlers is a social media group for parents and caregivers of children with CF to share information and seek support.
3. CF Living
CF Living offers webcasts and other resources for parents of children with cystic fibrosis at different stages of life.
4. CF Roundtable
CF Roundtable provides information to adults with cystic fibrosis on the nature and progression of the disease, as well as the latest research advancements.
5. CF Solutions
CF Solutions offers pharmacy and nursing services to patients with financial difficulties in Oklahoma.
CysticFibrosis.com is an online community for people suffering from cystic fibrosis and it provides interactive forums and blogs to find support and share information.
7. Cystic Fibrosis Coping Skills
Cystic Fibrosis Coping Skills is a non-profitable online course designed by the Mayo Clinic to provide information on diagnosis and treatment of CF.
Cystic-L is a free email service designed for exchanging information and support specific to cystic fibrosis, including not only patients but also their families and loved ones.
9. Cystic Life
Cystic Life is an online community for patients to find others struggling with the same condition.
10. Daily Strength
Daily Strength is an online support group for patients with CF.
11. Heroes of Hope
Heroes of Hope is a project sponsored by Genentech that recognizes and salutes unique individuals with cystic fibrosis who strive to live full, productive lives and serve as role models to others
12. IME Video Library — Reducing Isolation: An Adult Cystic Fibrosis Support Group
IME Video Library — Reducing Isolation: An Adult Cystic Fibrosis Support Group is a video series about a support group and coping with the disease, sponsored by the University of Wisconsin-Madison
13. News For Parents
News For Parents is a website that offers basic information, expert advice, and the latest news on advancements to treat CF
14. Starbright World
Starbright World is an online community for teens with cystic fibrosis or other serious medical conditions
Cystic Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.