“What is Cystic Fibrosis?” – A Breathtaking Spoken Word Piece
Meet Morgan Grindstaff, also known as Cystik1. The 25-year-old YouTuber has been battling cystic fibrosis (CF). In this video, listen to him recite a strong and emotional spoken word piece about his struggle.
In his other videos, he talks about other aspects of having CF. Below, there’s a playlist documenting his Orkambi journey.
In March, the U.K. National Institute for Health and Care Excellence (NICE) issued a draft guidance against recommending Orkambi (lumacaftor-ivacaftor) for treating cystic fibrosis (CF) since its cost is too high for the low benefits it brings.
Cystic Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.