“What is Cystic Fibrosis?” – A Breathtaking Spoken Word Piece

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Meet Morgan Grindstaff, also known as Cystik1. The 25-year-old YouTuber has been battling cystic fibrosis (CF). In this video, listen to him recite a strong and emotional spoken word piece about his struggle.

Here’s 10 Cystic Fibrosis Channels You Must Follow

In his other videos, he talks about other aspects of having CF. Below, there’s a playlist documenting his Orkambi journey.

In March, the U.K. National Institute for Health and Care Excellence (NICE) issued a draft guidance against recommending Orkambi (lumacaftor-ivacaftor) for treating cystic fibrosis (CF) since its cost is too high for the low benefits it brings.

Cystic Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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