Now that’s one cool tattoo @luckycfmom #addingtomorrows @CF_Foundation #cysticfibrosis pic.twitter.com/oAROXBWuvR
— Peter Hodge (@peter100percent) October 8, 2015
In March, the U.K. National Institute for Health and Care Excellence (NICE) issued a draft guidance against recommending Orkambi (lumacaftor-ivacaftor) for treating cystic fibrosis (CF) since its cost is too high for the low benefits it brings.
My granddaugther had CF , She Passed Away On March/26/2016, She Was 18, Looking Forward and Worked So Hard , To Walk Down with her class of 2016 and getting her Diploma from High School & Going To College To Get Her PHD, Sadly She Didn’t,She Was A Week Away, She Had A Double lung Transplant When She Was 9, She Never Felt Sorry For Herself & Didn’t Want Her Friends To Know,Or Be Her Friend Because She Was Sick, She Put A Video On YouTube , 10 Things About Kaitlyn Grannon, I Hope And Pray That Anyone Reading This Will Take The Time To Watch It, SheHas A 15 yrs Old Sister With CF, So Am Praying It Works For CF Patients,,, Please Watch Her Video, It Tell You What Kind Of A Beautiful Angel That She Was And Still Is,,
So sorry to hear about your granddaughter… I will watch the video. Many prayers to her sister for many years of health!