6 Cystic Fibrosis Organizations

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Here are six organizations doing remarkable work either in cystic fibrosis research or with CF patients and their families. You can help any of the groups directly or help raise awareness for them.

Cystic Fibrosis Foundation (CFF)

“The Cystic Fibrosis Foundation is the leading organization committed to finding new therapies and ultimately a cure for CF.”

Learn more about them here: www.cff.org

Learn more about how the Cystic Fibrosis Foundation marked ‘CF Awareness Month’ with Rockefeller Center window display.

Cystic Fibrosis Trust

“We are working towards a brighter future for everyone with cystic fibrosis by funding cutting-edge research, driving up standards of care and supporting people with the condition and their loved ones every step of the way.”

Learn more about them here: www.cysticfibrosis.org.uk

Recently, an innovative research center providing tailored physical activity and exercise regimens for young people with cystic fibrosis (CF) has been launched with support from the Cystic Fibrosis Trust.

Emily’s Entourage

“Emily’s Entourage raises money and awareness to help find a cure for cystic fibrosis. Nearly 70,000 people worldwide with CF are waiting with bated breath for life-saving breakthroughs. We’re mobilizing friends, families, and communities to join Emily’s Entourage on our quest for new treatments and a cure.”

Learn more about them here: www.emilysentourage.org

The project is growing so much that it caught People.com’s attention which was a big step for both Emily’s Entourage and cystic fibrosis awareness.

Boomer Esiason Foundation

“The Boomer Esiason Foundation is a partnership of leaders in the medical and business communities joining with a committed core of volunteers to provide financial support to research aimed at finding a cure for cystic fibrosis. The Foundation works to heighten education and awareness of cystic fibrosis and to provide a better quality of life for those affected by cystic fibrosis.”

Learn more about them: www.esiason.org

Learn more about how the Boomer Esiason Foundation CF ambassador and CFer Jerry Cahill celebrated his 60th birthday.

Cystic Fibrosis Canada (CCFF)

A Canada-wide health charity, which funds cystic fibrosis research and care.

Learn more about Cystic Fibrosis Canada’s financing of a new study of experimental CF drug.

Take A Breather Foundation

“Take A Breather Foundation provides respites in the form of wishes for children who have been touched by cystic fibrosis.”

Learn more about them here: www.takeabreather.net

“Our name is actually our mission. We provide a ‘breather’ for these children.”

Cystic Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.


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